Should You Enroll Your Child in a Clinical Study?
...for many families, and parents should feel free to ask as many questions as they want to make an informed decision,” Dr. Gulati says. Now 9 years old, Ian’s parents...
Research
...trials to translational efforts to maximize efforts towards our goal to #EndPKD. Questions? Please feel free to contact us by email or at 800.753.2873 for more information! ADPKD Registry Current...
Volunteers
...safely in many communities. Effective May 1, 2022, PKD Communities may begin meeting in-person following all local regulations regarding masks and safe gatherings. If you have questions about planning community...
Tips to empower yourself as a great patient advocate
...get consumed by our appointments, our medical tasks and how we feel, but rather try to lead the best quality of life despite what we are going through. I’ve been...
Central Florida
Welcome to the community With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight...
