PKD Patients Join Research Grant Selection Panel
...their confidence. Why do you think it’s important for PKD community members to participate in the grant review panel? Kristee: Members of the PKD community raise money, awareness, education, and...
Biomedical Research and Surveillance Research: What’s the Difference?
...community’s understanding of the PKD patient population, providing benefits to our wider communities. PKD Foundation and Research As the PKD Foundation pursues its vision to #endPKD, both biomedical and surveillance...
My Living Donor Journey: Craig Gile
...Klee mentioned that his kidney function was beginning to deteriorate; a transplant was needed. In order to understand the transplant process, Craig asked him questions. He quickly realized the wait...
5 Reasons to Make Your PKD Legacy Estate Plan
...preserved, managed, and distributed after your lifetime. A plan can be created online, but most often, it’s completed with the guidance of an attorney. As we come into fall and...
5 Powerful Updates to the ADPKD Registry
...When patients were asked to update their information, they had to re-enter details that hadn’t changed much from the last time. For example, there are 25 questions in the core...
