Life is coming up roses
...decided to consider which varieties would be best so I could come back a week later and choose from the prettiest ones she set aside. Then, I would return the...
Even the sun needs downtime
...Try to keep your composure and quality of life.” This was the start of a message I recently received from my nephrologist. This great advice, while sometimes easier said than...
Navigating emotions
...primary sclerosing cholangitis (PSC) is a perfect example of this. Valen’s mother’s wish on a wishing tree at the fall community festival. Following my PSC diagnosis, my parents dropped everything...
Accepting help
A henna tattoo, reading “breathe,” that Valen got before her liver procedure. I’m a very active participant in my healthcare. I am passionate about being the best advocate for myself...
Summer tips: Why it’s important for PKD patients to stay hydrated
...with considerable individual variation. Thirty-three percent of your average daily fluid intake comes from a combination of water in food and your body producing water when it burns fat for...
