2019 in review and what’s ahead in 2020
...special line-item of funding that would be dedicated only to PKD, so our researchers don’t have to compete with other disease areas for funding. This year, PKD successfully maintained its...
Carrier
An individual who carries one copy of a recessive gene like that for ARPKD; they do not have the disease but can pass the mutation on to their offspring....
Advocating on PKD Awareness Day
...in PKD advocacy. Before the new year, we helped pass the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2019. This year, we supported secure protections for living...
The Living Donor Protection Act: What You Need to Know
...But it has yet to pass Congress and be signed into law. However, the PKD, kidney disease, and transplant communities have seen growing support for this legislation. Last Congress, the...
The Colors of Hope
...Donate Life. I also had the pleasure of sharing my story at the DMV in Truckee, CA during an event honoring their office for having the highest donor registration rates...
