PKD Connection Blog

In honor of National Donor Day, Liz Casperite, Education Coordinator for the Philadelphia Chapter, and her kidney donor Maria Weaver share their transplant story to raise awareness for living donation and the challenges involved in transplantation. Liz: What compelled you […]

When someone you love has been affected by PKD, one of the most powerful ways you can help fight for them is by raising funds toward research. Whether you donate by yourself, host an event or take on a challenge […]

A few months ago in November, I was getting prepped for a back injection procedure in hopes of relieving some of my chronic pain. An hour and a half passed with more than ten failed attempts to place an IV […]

This past weekend, we lost our esteemed Co-Founder Jared J. Grantham, M.D. Dr. Grantham’s brilliant career as a clinician and researcher spanned more than five decades, most of which were dedicated to advancing PKD research and science. His determination to […]

Get to know our new CEO, Andy Betts. After an in-depth national search to identify the best person to lead the Foundation, our Board’s executive search committee concluded that Andy’s expertise and experience are key to moving us closer to […]

“The pain taught me how to write and the writing taught me how to heal.” -Harman Kaur I am excited, honored and in awe that this is my 200th blog post. Today’s post is dedicated to you: all of my […]

In 2016, we were one strong, united front against polycystic kidney disease:         Thank you for uniting with us and raising more than $1.7 million for the 2016 Walk for PKD. We couldn’t have done it without […]

As a PKD patient, the typical “eat healthy and get fit” resolutions may be harder to take on than the average person. They are, however, important to tackle since diet and exercise are two factors that you can control and […]