PKD Connection Blog

I flew to my birthplace of York, Pa. at the beginning of May to say my goodbyes to my paternal grandmother, who passed on April 11, 2017, and to support my family. I stood in the mausoleum where my grandmother […]

Dear Mom, Happy Birthday! You are 61! Wow! The first word that comes to mind is ‘hallelujah!’ With living cross-country from each other—from California to Pennsylvania—for seven years now, I am so grateful to be in Pennsylvania with you today […]

You may have recently read our article featuring 2015 PKD Foundation Fellowship recipient, Whitney Besse, M.D., and her involvement in a new PKD and PLD study at Yale. We followed up with her to hear more about her work and how […]

In honor of Volunteer Appreciation Week, we’ve put together a special Q&A between an experienced Coordinator and a new Coordinator. Beth Leven, Austin Walk Coordinator, has been involved in the PKD Foundation’s volunteer leadership for the past 15 years in […]

Meet Gene Okun! Gene has PKD, and so did his father. Since his diagnosis, Gene’s kidneys have grown big (doctors say they may be the world’s largest) and dumb (functioning at only 18 percent). Currently in search of a living […]

This year in the National Capital Chapter, one team is celebrating some major milestones in their contributions to the Walk for PKD. We recently sat down with team captain Peggy Krusell to learn more about these amazing achievements and why […]

“More than 80 percent of those with chronic, invisible illnesses downplay their true feelings to make others feel more at ease.” * This statistic really hits home. Can you relate to this, too? For those of us without a “PKD belly,” […]