PKD Connection Blog

I was diagnosed with PKD in October 2015. I am the fifth generation affected by PKD in my family. My great-great-grandmother, great-grandmother, grandfather, great-uncle and my mom all have or had PKD. I am the youngest member of my family […]

Being a patient is no easy feat, and I believe the same applies to the person caring for a patient. I’ve been dealing with health issues since I was a little girl, so being a patient is second nature to […]

As we get into the heat of summer, one thing is on everyone’s mind: vacation! We know that traveling as a PKD patient may be challenging, so here are some tips and tricks to make summer travel easier for you: […]

The PKD Foundation has been a landmark in Alex Coglianese’s life for as long as she can remember. Born the same year as the Foundation’s establishment, she recalls her beloved father, Fred, a PKD patient himself, being one of the […]

Life has taught me how adaptable we are to change and how fun change can be. Today marks six years since Noah and I arrived in Auburn, Calif. following our month-long cross-country move from Pennsylvania to California. I couldn’t be […]

I’ve learned a lot from living with PKD since the age of 10. PKD and the health issues I’ve endured have taught me all facets of strength, emotionally and physically. I believe what we go through in our youth has […]