Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
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PKD Will Not Beat Me
PKD Will Not Beat Me is my motto, my mission and my passion. It’s how I stand up to our disease and show it who’s in control. It is how I lead my life and I try to encourage others to incorporate...
Challenge Accepted
When diagnosed with polycystic kidney disease (PKD), facing and overcoming challenges are part of the disease. This month, the PKD Foundation is hosting a month-long challenge. One that if...
Hello Hope
I was standing with my back toward the wall at Starbucks in the Sacramento International Airport, waiting for my tall, iced, green tea unsweetened with two Splenda Sweeteners. I was wearing a...
Dating The Sick Girl
I was in my early 20s when I first met my husband, Noah. We saw each other two nights in a row at different locations. The friends we were both with knew each other. The second night we saw each...
Germaphobe
Upon becoming a kidney transplant recipient, we must take lifelong medicine that suppresses our immune system to help prevent our body from rejecting the donated organ. At this same time, germs...
32 Candles
During the silent moment prior to blowing out my birthday candles, I always think of the reality that I was not expected to see my 19th birthday. Also, that it is a true miracle I have turned 32...
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I didn’t have time to prepare and worry about my kidney transplant. Things happened quickly and my focus was survivingRead More
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We just finished Kidney Month, and today marks the beginning of Donate Life Month. For people with PKD, transplantation isRead More
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When living with a genetic disease, such as PKD, we have seen and felt the effects of it throughout multipleRead More
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PKD Will Not Beat Me is my motto, my mission and my passion. It’s how I stand up to ourRead More
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When diagnosed with polycystic kidney disease (PKD), facing and overcoming challenges are part of the disease. This month, the PKDRead More
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I was standing with my back toward the wall at Starbucks in the Sacramento International Airport, waiting for my tall,Read More