The basics of PKD

If you're just diagnosed or looking for a refresher, this will cover all the basics of the disease.

Genetics: PKD genes and how they work

As part of a webinar series on PKD in children, pediatric nephrologist Lisa Guay-Woodford, M.D., discusses PKD genes and how they work. September 17, 2019 | 7 p.m. CT

About PKD / My story

What is ARPKD?

Learn basic facts about what ARPKD is, how it impacts people and how the PKD Foundation helps.

PKD in Children

Both ADPKD and ARPKD can affect children. Learn more about the two types and how they each impact children and their families.

Free PKD information packet and ADPKD patient handbook

This complimentary packet of resources includes general information about PKD and the ADPKD patient handbook.


Autosomal recessive polycystic kidney disease (ARPKD) is a relatively rare form of PKD, affecting approximately one in 20,000 children.

ARPKD genetics

Learn about the genetics of ARPKD and how children can inherit this disease from their parents.

ADPKD genetics

Learn about the genetics of ADPKD and how children can inherit it from their parents.

About PKD

Polycystic kidney disease (PKD) is one of the most common, life-threatening genetic diseases. It affects thousands in America and millions worldwide, who are in urgent need of treatments and a cure.

What is a cyst and how is it formed?

Learn how cysts develop and multiply in your kidneys.