How motherhood inspired PKD patient to get involved with tolvaptan clinical trials
...Las Vegas Walk for PKD. It has been 11 years since I started taking the drug. My kidney function was stable for years, but as expected, has slowly declined. I...
Father of a PKD patient celebrates Father’s Day by sharing his family’s story
...of guidance for us after Meredith’s diagnosis. Since then, we’ve committed to learning everything we can about PKD as a family. The McVey’s at the Milwaukee Walk for PKD. The...
New handbook provides help and education for ARPKD parents and patients
Michele and Matt Karl receiving a fundraising award at the Hudson Valley Walk for PKD We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents...
Local volunteer leaders give an inside look at the New York City Chapter
...stories, and sharing discoveries that lie outside the range of research. Meg and her son, Dov, at the 2018 NYC Walk for PKD PKDF: How did you first get involved...
Meet Lisa Baxter, PKD YouTube Advocate
...joint pain. I’ve had to learn to walk with a cane and a leg brace and now I walk with a walker because of my bones. I go to conferences...
