Outreach Ambassadors
The Outreach Ambassadors Program is meant to build new bridges between the PKD Foundation and previously underserved communities. The Outreach Ambassadors Program will also guide communities of color through the Foundation’s resources on disease management, treatment options, and navigating health care systems.
ViewCommunity Reaction Panel
The PKD Foundation Community Reaction Panel provides feedback on pre-determined topics of interest to Industry Alliance partners and PKD Foundation programs and services. The panel consists of patients and caregivers with varied experiences across the continuum of disease progression and includes experience with ADPKD and ARPKD.
ViewManaging PKD Complications
Published on March 31, 2022 | After a diagnosis, it’s natural to have questions about polycystic kidney disease. How will it affect your daily life? Is there a treatment? How ...
ViewPatricia Mittlestadt
My name is Patricia Mittlestadt and I am 65 years young and on the kidney transplant waiting list. My dream is to receive a kidney before I go on dialysis, ...
ViewManaging PKD and Fatigue
Published on February 22, 2022 | In living with PKD, a healthy diet and regular exercise are important aspects in managing PKD. But there’s one factor that can make daily ...
ViewAdvocacy Champions
The Advocacy Champion Network (ACN) is vital to raising awareness of PKD and increasing research dollars to bring treatments and therapies to patients and to provide the best care for those who are reliant on dialysis or a kidney transplant to survive.
Fundraising Ambassadors
The Fundraising Ambassador plays an important role in the local PKD community by identifying local fundraising opportunities and organizing the event. With the support from PKD Foundation staff, your contribution will facilitate fundraising that supports the mission of the PKD Foundation.
ViewPKD Connect Peer Mentors
PKD Connect Peer Mentors provide resources, guidance, motivation, and emotional support to people impacted by PKD.
ViewVolunteer Roles
PKD Connect Ambassadors PKD Connect Ambassadors play a vital role in providing local support for PKD communities across the United States and serve as the frontline for individuals new to the PKD ...
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