Alex Coglianese

Why I Walk: Alex Coglianese The PKD Foundation has been a landmark in Alex Coglianese’s life for as long as she can remember. Born the same year as the Foundation’s ...

View
Peggy Krusell

Why I Walk: Meeting milestones to fund research This year in the National Capital Chapter, one team is celebrating some major milestones in their contributions to the Walk for PKD. ...

View
Nell Gustavson

Finding hope and new life through a long-lost family bond I was diagnosed with PKD in 1987 at the age of 27. This was not a big surprise for me, ...

View
Honoring baby Helen’s memory through fundraising

Voices of PKD: Kristen Neary On May 24, 2002, my husband Keith and I welcomed our first daughter, Helen Grace into the world. She was perfect on the outside and ...

View
Jennifer Tompkins Kirshenbaum amplifies voices of those living with PKD by particpating in an in-district meeting

During the legislative year, the PKD Foundation sends alerts of when to contact our senators and congress representatives to vote for specific bills. I would always send an e-mail to ...

View
Kriste Lewis fulfills her dreams and lives her best life with PKD

It was always on Kriste Lewis’s bucket list to try out to be an NFL cheerleader. As she approached her 40th birthday, she decided to give herself a gift and ...

View
Young scientist on mission to find alternative to his own transplant

If Demetri Maxim has anything to say about it, he could be the solution to his own problem. Demetri has PKD. He’s also a prize-winning scientist, budding inventor and patent ...

View
A family tree of PKD

Polycystic kidney disease is a family disease. Like freckles and blue eyes, there’s a chance that a parent will pass it along to their child. Though Barbara Meskin’s family had ...

View
A heart of gold

By Trisha Muldoon About Sami Lynn In October 2008, my husband Jason and I found out that we were expecting our first child. In March 2009, we found out that ...

View
Taking a stand to change family history

I didn’t want my uncle to be taken away so I just stepped in and helped. Many families carry genetic burdens of disease. Illnesses like breast cancer or chronic issues ...

View