ADPKD Centers of Excellence Program


Thank you for being a part of the ADPKD COE program!

You have access to this page because you have been noted as the contact for your center to connect patients with ADPKD with patient navigator services. Make sure to check out our website ( where patients and families impacted by ADPKD will find you.

Attached you’ll find a description of patient navigation expectations.

Mark your calendars

February (date TBD) – Patient Navigator Introduction and Training Webinar

June 22, 2023 – COE Conference in Denver, CO


Research participation resources, including a directory of all currently-recruiting studies in ADPKD:

Centers of Excellence homepage and searchable map of centers:

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