by Sydney Johnston | Mar 9, 2023 | Awareness, Staying Healthy
Published on March 9, 2023 | Today is World Kidney Day. Each year, the World Kidney Day Joint Steering Committee selects a topic to highlight awareness of kidney health around the world. For 2023, they chose the topic, “preparing for the unexpected, supporting the...
by Sydney Johnston | Jan 26, 2023 | Awareness, Fundraise Your Way
Published on January 26, 2023 | Each of us can help #endPKD. For many, collecting donations is one of the first things that comes to mind. But how do you start your own PKD fundraiser? Through Fundraise Your Way (FYW), you can take your passion and turn it into a way...
by Sydney Johnston | Nov 14, 2022 | Awareness, Caregivers
Published on November 14, 2022 | In November, we celebrate National Family Caregivers Month. Family caregivers are a crucial pillar of our healthcare system, proving necessary care to their loved ones. Jennifer Visda knows firsthand what life is like as a family...
by Sydney Johnston | Nov 1, 2022 | Advocacy, Awareness
Published on November 1, 2022 | This year, the PKD Foundation created the Peer Ambassadors program. Established to build new bridges between the Foundation and previously underserved communities. Recently, two Peer Ambassadors, Tatiana Mangwi and Alyssia Gomez,...
by Sydney Johnston | Aug 18, 2022 | Awareness
Published on August 19, 2022 | Every two years, thousands of transplant recipients, living donors, donor families, individuals on waiting lists, caregivers, transplant professionals, and supporters gather for the world’s largest celebration of life— the Transplant...
by Sydney Johnston | Jun 21, 2022 | Awareness, Fundraise Your Way
Published on June 21, 2022 | A PKD patient, advocate, and PKDF volunteer, Glenn Frommer organized the RideForPKD to raise $500,000 for PKD research. On May 1, Glenn Frommer kicked off his journey across the country. And after nearly two months on the road, we’re...
