The Foundation’s financial commitment over the years has seen results on a local, national, and even global level. This includes implementing funding opportunities for emerging investigators, support for innovation, and leveraging funding from prestigious institutions such as the National Institutes of Health and Department of Defense.

Our research team also launched the nation’s largest patient-powered ADPKD Registry and routinely convenes research stakeholders in the PKD Outcomes Consortium. In 2022, the Foundation launched the PKD Centers of Excellence program to ensure access to PKD-specialized care and accelerate the translation of research studies to the clinic.

Together, these programs span from pre-clinical basic science to clinical trials to maximize efforts towards our goal of ending PKD.
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Research Related Resources

For patients who want to stay up-to-date with research.

Grantham Dinner: PKD Foundation Leadership Panel and Q&A
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Grantham Dinner: PKD Foundation Leadership Panel and Q&A
Discover, Connect, Engage: How you can make a difference
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Discover, Connect, Engage: How you can make a difference
PKDCON Continued: Your Questions Answered
  • 2026
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PKDCON Continued: Your Questions Answered
How Fall Kidney Meetings Support PKD Research and Clinical Trials
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  • Total kidney volume
How Fall Kidney Meetings Support PKD Research and Clinical Trials
Scientific Conference: Patient Perspective Webinar
  • 2025
  • ADPKD
  • Living with PKD
  • Research
  • Webinar
Scientific Conference: Patient Perspective Webinar
5 Powerful Updates to the ADPKD Registry
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  • ADPKD Registry
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5 Powerful Updates to the ADPKD Registry
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