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Current career opportunities

Walk for PKD Specialist (Full-time, exempt)

Supervisor: Director of Community Fundraising

Primary Function
Responsible for leading strategic initiatives to drive revenue and participation for the Walk for PKD.

Duties and Responsibilities

  • Manage approximately 15 emerging or mid to high level Walk for PKD events, to include:
    • Strengthen the fundraiser pipeline through engagement and coaching.
    • Increase the volume of key fundraisers and team captains.
    • Achieve revenue and participation goals.
  • Manage Walk for PKD national and local sponsorship program, to include:
    • Implement a year-round sponsor retention and recognition program.
    • Create and deliver specialized sponsorship prospecting and solicitation training.
    • Provide solicitation tools for volunteer leaders
    • Manage sponsor records in compliance with our data standards
  • National fundraiser portfolio management including; retaining, increasing and acquiring mid-level fundraisers.
  • Provide comprehensive volunteer management and coaching, with the ability to develop resources to facilitate volunteer performance.
  • Develop a strong working knowledge across all internal integrated information systems, including TeamRaiser, Luminate Online, Raiser’s Edge and Financial Edge.
  • Provide excellent customer service to external and internal constituents.
  • Availability to accommodate weekend event travel and after hours volunteer training/coaching.
  • Other duties as assigned.

Education/Experience
Bachelor’s degree and volunteer management experience preferred. Two years experience in not-for-profit field or a minimum of three years professional experience.

Qualifications
Candidate must possess a commitment to the vision and mission of the PKD Foundation. Candidate Must:

  • Exhibit competency in organization & project management.
  • Possess strong interpersonal, public relations, written and oral communication skills, and strong public speaking skills.
  • Exhibit the ability to work cooperatively with volunteers.
  • Be a self-starter and possess the ability to prioritize workflow while performing a variety of duties at one time.
  • Possess a collaborative spirit and be skilled in problem solving and team-building.
  • Be able to meet deadlines, make accurate decisions, work independently and as a team player, and act in a professional and positive manner when dealing with the public.
  • Must have a valid driver’s license and good office (including computer) skills.

Job Requirement
This is a full-time, exempt position requiring some evening and weekend hours and travel. When this is necessary, flextime will be provided. Must be willing and able to travel as needed and exhibit good stewardship of PKD Foundation resources.

Benefits
We offer highly competitive compensation in addition to an extensive benefits package including:

  • Paid time off – 27 days
  • 11 Paid Holidays
  • Medical, Dental and Vision benefits
  • 403(b) 8.5% of salary, no match required

We work to maintain the best possible environment for our employees and strive to provide a collaborative, creative environment where each person feels encouraged to contribute to our processes, decisions, planning and culture.

To Apply
Qualified candidates should forward their cover letter, resume and salary requirement to careers@pkdcure.org. Please reference “Walk for PKD Specialist” in the subject line.

EOE


Director of Government Affairs (Full-time, exempt)

Supervisor: Chief Scientific Officer

Primary Function: Responsible for: Directing the government affairs and advocacy work of the Foundation; administration of research grants, fellowships and other activities, relationships with healthcare and related industries.

Duties and Responsibilities

  • Direct all government affairs and advocacy work, engaging with:
    • Federal and international agencies (NIH, FDA, DOD, EMA, VA, etc.):
      1. Build relationships for the benefit of the PKD community, on behalf of the Foundation CSO and CEO
      2. Schedule regular meetings to discuss the state of PKD research and how to secure funding for PKD research and researchers.
      3. Engage PKDF leadership attendance at key times
      4. Work with development to apply for grant funding, as appropriate.
    • Key members of congress to:
      1. Educate them about PKD
      2. Work to build policy/legislation of benefit for the PKD community
      3. Continually and regularly visit with members and staff to raise the profile of the PKDF and PKD patients
    • Partner organizations (ASN, KHI, NHC, NORD, etc.) to:
      1. Provide a voice for the PKD community within these groups
      2. Collaborate on mutually beneficial legislation
    • Pharma and biotech companies to:
      1. Support and encourage PKD therapy development
      2. Assist in FDA approval efforts, as necessary
      3. Provide patient advocates, as necessary
    • Lead all policy and lobbying activities. Work closely with patient support, marketing and chapter teams as they craft and distribute messaging, educate and guide local advocates to participate in various “Hill” events.
    • Responsible for monitoring the expense budget for areas of responsibility.
    • Provide excellent customer service, anticipating and exceeding the needs of constituents.

Required:

Education/Experience – Candidates need to have a minimum of a bachelor’s degree, five to eight years of progressive experience and responsibility and achievement in program development and management. Experience in training and development or adult learning preferred; experience in healthcare, life sciences or related field preferred; experience in non-profit preferred.

Qualifications:

Ability/Skills – This individual must have excellent verbal and written communication skills, strong planning and analysis skills, excellent technology skills, an ability to work in a team environment, advanced problem solving and team-building skills, be self motivated and
punctual.

Job Requirements – This is a full-time exempt position that will require evening and weekend work several times a year surrounding national events. Candidate must be willing and able to travel regularly and inexpensively.

Benefits
We offer highly competitive compensation in addition to an extensive benefits package including:

  • Paid time off – 27 days
  • 11 Paid Holidays
  • Medical, Dental and Vision benefits
  • 403(b) 8.5% of salary, no match required

We work to maintain the best possible environment for our employees and strive to provide a collaborative, creative environment where each person feels encouraged to contribute to our processes, decisions, planning and culture.

To Apply
Qualified candidates should forward their cover letter, resume and salary requirement to careers@pkdcure.org. Please reference “Director of Government Affairs” in the subject line.

EOE


Financial Controller (Full-time, exempt)

Supervisor: Interim Chief Administrative Officer

Primary Function: The Financial Controller is responsible for leading general finance/accounting, of the Foundation, as well as assisting the CAO maintain to establish appropriate policies and procedures related to the financial regulatory and budgeted needs of the foundation.

Duties and Responsibilities

  1. Oversee the accurate and timely preparation of organizational budgets and financial statements; monitor and report on budget variances; assist CAO to ensure cost effective use of resources in accordance with strategic plan and ongoing financial reporting.
  2. Maintain and enhance banking and investment management relationships; negotiate and recommend terms and conditions of relationships; ensure maximum return on investments in accordance with policies established by the Board of Trustees.
  3. Manage relationship with insurance broker to ensure the Foundation maintains appropriate levels of liability and property coverage.
  4. Oversee the receipt, deposit, recording and appropriate acknowledgement of all donations.
  5. Ensure that the Foundation maintains charitable registrations and sales tax exemptions in appropriate states.
  6. Maintain written policies and procedures related to accounting
  7. Coordinate Finance Department activities with other departments; respond to requests for information and analyses; refer sensitive/important issues to CAO.
  8. Manage Financial performance.
  9. Perform other related duties as required.

Required Qualifications

Education/Knowledge/Experience:

  1. B.A./B.S. degree in accounting or related field. CPA, MBA or MPA preferred.
  2. 5-7 years nonprofit accounting and/or management experience.
  3. Proficient in utilizing and understanding computer systems and reporting packages – experience with BlackBaud software preferred.
  4. Analytical and financial/business management skills.
  5. Well organized; problem-solver, with strong attention to details.
  6. Ability to work in a professional and confidential capacity.
  7. Pro-active work ethic.
  8. Excellent verbal and written communication skills.

Benefits
We offer highly competitive compensation in addition to an extensive benefits package including:

  • Paid time off – 27 days
  • 11 Paid Holidays
  • Medical, Dental and Vision benefits
  • 403(b) 8.5% of salary, no match required

We work to maintain the best possible environment for our employees and strive to provide a collaborative, creative environment where each person feels encouraged to contribute to our processes, decisions, planning and culture.

To Apply
Qualified candidates should forward their cover letter, resume and salary requirement to careers@pkdcure.org. Please reference “Financial Controller” in the subject line.

EOE