Join our team

Thank you for your interest in careers at the PKD Foundation!

The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD to improve the lives of those it affects. Our vision is to #endPKD.

Due to organization growth, we have the following positions open at the PKD Foundation:

Direct Response Specialist

Supervisor: Chief Advancement Officer

Primary Function:
Develop and work with internal and external partners to coordinate, implement, and evaluate online fundraising and engagement programs by executing effective strategies via direct mail, email, website promotions, and other digital channels and emerging platforms that achieve established revenue targets to support the mission of the foundation. This position does not have supervisory responsibilities.

Duties and Responsibilities:

  • Oversees digital fundraising and engagement initiatives to acquire and retain donors and achieve fundraising targets.
  • Oversees the creation and execution of online cultivation, stewardship, and engagement communications, as well as direct solicitations.
  • Implement and oversee Fundraise Your Way and Giving Day campaigns.
  • Coordinates with internal and external partners to develop and manage emails, landing pages, tools and graphics for online fundraising activities.
  • Works within a consistent brand voice in visual and editorial style.
  • Develops schedules, key milestones, and action items to be socialized and used for internal teams and external agency partners.
  • Manages project status meetings, including tracking and reporting on action items.  Keeps the project plan up-to-date. Provides frequent project status reporting.
  • Ensures projects are completed on time, in scope, and on budget.
  • Develops and manages online communication calendar; ensure integration with foundation marketing and editorial calendars and asset inventories.
  • Develops and manages processes; optimizing through continuous improvement. Develop and test new initiatives and innovative concepts.
  • Reviews and reports campaign performance with recommendations for improving overall direct response program results; analyzes data and creates strategies for target audiences.
  • Assists other members of the team as needed to address donor requests, help resolve problems, and maintain current and accurate donor records.

Qualifications:

  • Bachelor’s degree in marketing, public relations, journalism or related field; plus 3 years’ experience in related work environment.
  • Knowledge of and proven ability to develop and implement digital fundraising strategies.
  • Experience with building and maintaining donation forms, surveys, and other engagement features, and running reports/interpreting analytics for key insights.
  • Excellent writing and editing skill with an extreme attention to detail.
  • Strong working knowledge of Microsoft Office Suite (Word, Excel, etc.). Experience with Photoshop, Salsa Engage, and HTML preferred.
  • Ability to work under and meet urgent and changing schedule deadlines with frequent interruptions.
  • Strong interpersonal skills and ability to collaborate diplomatically with all levels of foundation staff and leadership.
  • Ability to work independently, be flexible, and manage time effectively.
  • Previous experience resourcing and working with freelance talent and vendors.
  • Travel may be required.

Physical Demands:
Must be able to sit or stand for extended periods of time, use hands and arms, read, stoop, crouch, talk, hear, see objects clearly at 20 inches or less, and lift and move items weighing up to 20 lbs. The physical demands described here are representative of those that must be met by an employee to successfully perform the essential functions of this job. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions. This job description is not intended to be all-inclusive; the employee may also be expected to perform related duties as assigned.  This organization reserves the right to change job duties as the need arises. This job description does not constitute a written or implied contract of employment.

To Apply:
Qualified candidates are encouraged to apply by sending an email of intent to careers@pkdcure.org. Please reference “Direct Response Specialist” in the subject line.


Director of Strategic Partnerships (Full time, exempt)

Supervisor: Chief Advancement Officer

Primary Function:
Responsible for: cultivating and maintaining relationships among corporate and industry partners, foundations, and other relevant organizations; identifying and developing opportunities to collaborate with external partners in order to amplify the ability of the foundation to fulfill its mission.

Duties and Responsibilities: Strategic Partnership Management

  • Gather insights and quickly understand the unmet need(s) of potential partners.
  • Develop and maintain external partnerships with corporate and industry partners. Proactively drive awareness of and engagement with Foundation programs.
  • Work with internal stakeholders to develop and operationalize strategic partnership activities and initiatives. Serve as the primary point of contact between external and internal partners.
  • Define, track, and report out on metrics to internal and external stakeholders.
  • Ensure partner satisfaction.

Strategy Development and Execution

  • Meet or exceed annual revenue goals.
  • Regularly monitor industry trends, conduct competitive analysis, and evaluate the Foundation’s programs and initiatives.
  • Incorporate partner feedback into Foundation programs as part of a continuous improvement and to support future program offerings.
  • Oversee development of internal and external materials around partner strategy including communications to board members, staff, and external audiences.
  • Work closely with the Director of Government Affairs to ensure consistent messaging with Pharma and biotech companies developing PKD therapies.
  • Work closely with Director of Community Engagement and Sr. Director of Community Fundraising to obtain funding for Foundation initiatives. Develop, submit, and monitor grant funding requests.
  • Responsible for regularly tracking and reporting on revenue performance and monitoring the expense budget for areas of responsibility.
  • Provide excellent customer service, anticipating and exceeding the needs of constituents.

Education/Training:

  • Minimum of a bachelor’s degree; Master’s degree preferred.
  • Five to eight years of progressive experience and responsibility and achievement in program development and relationship management.
  • Experience in training and development or adult learning preferred.
  • Experience in healthcare, life sciences or related field preferred; experience in non-profit preferred.
  • Working knowledge of the Accreditation Council for Continuing Medical Education Standards for Commercial Support preferred.

Knowledge/Judgment:

  • Must have excellent communication (verbal, written) and presentation skills.
  • Strong planning and analysis skills with a bias towards action.
  • Demonstrated interpersonal and leadership skills; ability to work in a team environment.
  • Be self-motivated and punctual.
  • Adherence to the highest degree of ethical behavior and professionalism.

Technical Skills:

  • Excellent technology skills
  • Proficiency in Microsoft Office Suite

Physical Demands:

  • Must be able to sit or stand for extended periods of time
  • Use hands and arms, read, stoop, crouch, talk, hear, see objects clearly at 20 inches or less
  • Lift and move items weighing up to 20 lbs

The physical demands described here are representative of those that must be met by an employee to successfully perform the essential functions of this job. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions

Travel:

  • Travel as needed

This job description is not intended to be all inclusive. PKD Foundation reserves the right to add, delete, or modify job duties and responsibilities as the need arises. This job description does not constitute a written or implied contract of employment.

To Apply:
Qualified candidates are encouraged to apply by sending an email of intent to careers@pkdcure.org. Please reference “Director of Strategic Partnerships” in the subject line.


Regional Community Fundraising Specialist (Dallas)

Supervisor: Community Fundraising Strategist

Primary Function:

  • Manage a region of fundraising events; implementing a strategy for revenue growth and acquisition goals for team captains, sponsors and events.
  • Manage a strategic coaching and cultivation calendar to span all events, participants and sponsors in defined region.
  • Live and work remotely within assigned region (Dallas).

Duties and Responsibilities:

  • Retain, recruit and coach volunteer leaders to achieve participation and revenue goals for each assigned location.
  • Develop and distribute resources to facilitate volunteer performance.
  • Identify and assist local volunteer leadership in recruiting a committee.
  • Maintain a strong working relationship with local volunteers.
  • Facilitate event logistics and assist with local promotion of assigned fundraising events.
  • Monitor and measure the fundraising progress of Team Captains. Analyze, review and report on trends, new acquisition and retention.
  • Utilize team captain resources to increase overall number of team captains per event and increase team fundraising.
  • Prospect and solicit new corporate sponsors while cultivating past sponsors
  • Identify new fundraising event opportunities.
  • Work cooperatively and collaboratively with all Volunteer Leadership staff.
  • Stay up-to-date in peer to peer fundraising and volunteer management.
  • Provide excellent customer service.
  • Other duties as assigned.

Education/Training:

  • Bachelor’s degree from an accredited college or university.
  • A minimum of 3 years of experience in peer to peer fundraising, event and volunteer management.

Knowledge/Judgment:

  • Must have strong written and verbal communication skills.
  • Organizational and project management skills required.
  • Proficiency in managing multiple projects at one time.

Technical Skills:

  • Knowledge of peer to peer fundraising platforms.
  • Proficiency in Microsoft Office Suite.

Physical Demands:

  • Must be able to sit or stand for extended periods of time.
  • Use hands and arms, read, stoop, crouch, talk, hear, see objects clearly at 20 inches or less.
  • Lift and move items weighing up to 20 lbs.

The physical demands described here are representative of those that must be met by an employee to successfully perform the essential functions of this job. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

Travel: 

  • Travel as needed. Occasional after-hours volunteer training/coaching.

This job description is not intended to be all-inclusive. PKD Foundation reserves the right to add, delete, or modify job duties and responsibilities as the need arises. This job description does not constitute a written or implied contract of employment.

To Apply:
Qualified candidates are encouraged to apply by sending an email of intent to careers@pkdcure.org. Please reference “Regional Community Fundraising Specialist (Dallas)” in the subject line.


Regional Community Fundraising Specialist (New York City)

Supervisor: Community Fundraising Strategist

Primary Function:

  • Manage a region of fundraising events; implementing a strategy for revenue growth and acquisition goals for team captains, sponsors and events.
  • Manage a strategic coaching and cultivation calendar to span all events, participants and sponsors in defined region.
  • Live and work remotely within assigned region (New York City).

Duties and Responsibilities:

  • Retain, recruit and coach volunteer leaders to achieve participation and revenue goals for each assigned location.
  • Develop and distribute resources to facilitate volunteer performance.
  • Identify and assist local volunteer leadership in recruiting a committee.
  • Maintain a strong working relationship with local volunteers.
  • Facilitate event logistics and assist with local promotion of assigned fundraising events.
  • Monitor and measure the fundraising progress of Team Captains. Analyze, review and report on trends, new acquisition and retention.
  • Utilize team captain resources to increase overall number of team captains per event and increase team fundraising.
  • Prospect and solicit new corporate sponsors while cultivating past sponsors
  • Identify new fundraising event opportunities.
  • Work cooperatively and collaboratively with all Volunteer Leadership staff.
  • Stay up-to-date in peer to peer fundraising and volunteer management.
  • Provide excellent customer service.
  • Other duties as assigned.

Education/Training:

  • Bachelor’s degree from an accredited college or university.
  • A minimum of 3 years of experience in peer to peer fundraising, event and volunteer management.

Knowledge/Judgment:

  • Must have strong written and verbal communication skills.
  • Organizational and project management skills required.
  • Proficiency in managing multiple projects at one time.

Technical Skills:

  • Knowledge of peer to peer fundraising platforms.
  • Proficiency in Microsoft Office Suite.

Physical Demands:

  • Must be able to sit or stand for extended periods of time.
  • Use hands and arms, read, stoop, crouch, talk, hear, see objects clearly at 20 inches or less.
  • Lift and move items weighing up to 20 lbs.

The physical demands described here are representative of those that must be met by an employee to successfully perform the essential functions of this job. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

Travel: 

  • Travel as needed. Occasional after-hours volunteer training/coaching.

This job description is not intended to be all inclusive. PKD Foundation reserves the right to add, delete, or modify job duties and responsibilities as the need arises. This job description does not constitute a written or implied contract of employment.

To Apply:
Qualified candidates are encouraged to apply by sending an email of intent to careers@pkdcure.org. Please reference “Regional Community Fundraising Specialist (New York City)” in the subject line.


Senior Director of Leadership Gifts (Exempt)

Supervisor: Chief Advancement Officer

Primary Function:
The Senior Director of Leadership Gifts (DLG) will collaborate with and report directly to the Chief Advancement Officer. This position will manage a portfolio of approximately 150 major gift donors and additional prospects to include cultivation and stewardship activities in the Northeast region. This is a supervisory position.

Duties and Responsibilities:

  • Possess a thorough understanding of PKD (the disease) and the mission of the PKD Foundation and be prepared to fully convey with donors/prospects.
  • Manages a portfolio of approximately 150-200 major gift donors and prospects to include cultivation and stewardship activities.
  • Partners with supervisor in establishing best practices and realistic and attainable financial goals.
  • Travels within assigned geographic area establishing and maintaining excellent relations and providing written proposals to donors/prospects as needed.
  • Works independently without extensive administrative support, being able to simultaneously manage multiple donors/prospects and completes tasks both professionally and in a timely manner.
  • Meets regularly with the supervisor to discuss and refine portfolio plans and strategies, track progress, and maintain open lines of communication.
  • Works in close conjunction with other development staff to develop optimal integrated strategies regarding major gift procurement.
  • Keeps management apprised of all significant interactions, inputting contact information in Salsa CRM and consulting with department leadership when appropriate.
  • Identifies and develops new prospects to reduce portfolio attrition and promote growth.
  • Develops and implements strategies to re-engage donors whose giving has decreased or lapsed.
  • Becomes familiar with planned giving and is prepared to collaborate with the Director of Planned Giving in developing an appropriate strategy with those donors/prospects who exhibit planned gift capability.
  • Works with Chapter volunteers to make creative connections between and among constituents, events, programs and their associated circles.
  • Ensures excellent customer service is provided to donors/prospects through timely responsiveness and quality in all interactions and personalized communications.
  • Participates in recommended professional training and development opportunities as time and budget permit.
  • Supervises a team of regional leadership gift directors and support staff.

Qualifications:

  • A Bachelor’s degree from an accredited college or university in fundraising, communications or a related field.
  • A minimum of five years of increasing experience in a major gift role with a proven track record of cultivating, upgrading and closing six-figure gifts.
  • Highly effective interpersonal, conversational and presentation skills leading to developing and maintaining positive relationships with a broad spectrum of donors/prospects.
  • Prior supervisory experience is required.

This job description is not intended to be all-inclusive; the employee may also be expected to perform related duties as assigned.  This organization reserves the right to change job duties as the need arises. This job description does not constitute a written or implied contract of employment.

Benefits:
We value our employees’ time and efforts. Our commitment to your success is enhanced by our competitive compensation (commensurate with experience) in addition to a benefits package including:

  • Paid time off – 20 days
  • 13 Paid Holidays
  • Medical, Dental and Vision benefits
  • 403(b) 8.5% of salary, no match required

We work to maintain the best possible environment for our employees and strive to provide a collaborative, creative environment where each person feels encouraged to contribute to our processes, decisions, planning, and culture.

To Apply:
Qualified candidates are encouraged to apply by sending an email of intent to careers@pkdcure.org. Please reference “Sr DLG” in the subject line.

EEO Employer/VETS/Disabled

Minorities are encouraged to apply. We thank all respondents for their interest in the PKD Foundation.


Controller

Primary Function:
The Controller is responsible for the overall accounting, cash management, investment management, budgeting, and financial reporting. Additionally, this position ensures compliance with federal, state, and local regulations, as well as PKDF policies, processes, and internal controls.

Responsibilities:

  • Manage and monitor all accounts, ledgers, and reporting systems, ensuring compliance with appropriate GAAP standards.
  • Manage and comply with local, state, and federal government reporting requirements, tax filings, charitable registrations, and sales tax exemptions.
  • Maintain internal control safeguards for the receipt of revenue, costs, budgets, and actual expenditures.
  • Monitor and confirm the foundation’s financial condition by conducting audits; providing information to external auditors.
  • Manage all accounting operations including Accounts Receivable, Accounts Payable, and General Ledger.
  • Manage banking and investment management relationships; maximize return, and limit risk, on cash by minimizing bank balances and making investments in accordance with policies established by the Board of Trustees.
  • Conduct month-end and year-end close processes. Prepare accurate and timely monthly financial statements, variance analysis, forecasts, and reports. For significant variances, perform detailed analysis to determine root cause and provide insight on any corrective action required. Present results to the Senior Leadership Team and Board of Trustees.
  • Prepare special reports by collecting, analyzing, and summarizing information and trends. Present results to the Senior Leadership Team and Board of Trustees.
  • Prepare budgets by establishing schedules; collecting, analyzing, and consolidating financial data and recommending plans.  Achieve budget objectives by scheduling expenditures, analyzing variances, recommending corrective actions.
  • Protect operations by keeping financial information and plans confidential.
  • Perform other duties as assigned.

Requirements:

  • Bachelor degree in accounting or related field. CPA strongly preferred.
  • 5-7 years nonprofit accounting and/or nonprofit financial leadership experience.
  • Ability to identify complex problems and review related information to develop recommendations and implement solutions.
  • Self-direction; proven ability to prioritize work and manage deadlines independently.
  • Proficient in utilizing and understanding computer systems and reporting packages.  Experience with BlackBaud software and Tableau preferred. Advanced Excel skills required.
  • Excellent interpersonal and written communication skills required.

Benefits:
We value our employees’ time and efforts. Our commitment to your success is enhanced by our competitive compensation (commensurate with experience) in addition to a benefits package including:

  • Paid time off – 20 days
  • 13 Paid Holidays
  • Medical, Dental and Vision benefits
  • 403(b) 8.5% of salary, no match required

We work to maintain the best possible environment for our employees, and strive to provide a collaborative, creative environment where each person feels encouraged to contribute to our processes, decisions, planning and culture.

To Apply:
Qualified candidates are encouraged to forward their cover letter, resume and salary requirement to: careers@pkdcure.org. Please reference “Controller” in the subject line. EEO Employer/VETS/Disabled Minorities are encouraged to apply. We thank all respondents for their interest in the PKD Foundation. For more information about the PKD Foundation, visit our website at pkdcure.org.


Office Manager

Primary Function:
The Office Manager is responsible for overseeing office operations and procedures including, but not limited to, information management, filing systems, office equipment, and supplies. Additionally, this position assists with the day-to-day human resources activities and manages payroll.  This position ensures compliance with federal, state, and local regulations, as well as PKDF policies, processes, and internal controls.

Responsibilities:

  • Develop organizational procedures and systems for administrative personnel and general office processes.
  • Develop and manage central filing system, including digital and paper, according to File Retention policy.
  • Maintain office equipment; negotiates and monitors purchase and lease contracts.
  • Maintain kitchen and dining area.
  • Order and maintain office supplies and inventory.
  • Work with building property manager to coordinate facility operations, including maintenance, repair, janitorial, safety, and security.
  • Work with Controller to ensure timely processing of accounts payable and reconciliations.
  • Assist with all internal and external HR related inquiries or requests.
  • Maintain employee records and files; maintain mandatory labor law posters.
  • Assist with recruitment process by drafting job descriptions, posting openings, identifying candidates, scheduling interviews, performing reference checks, and preparing employment offers.
  • Perform orientations and coordinates training sessions.
  • Manage payroll duties to include entering data, updating records, preparing reports, answering questions, resolving discrepancies.
  • Coordinate updates to Operations Polices and Employee Handbooks; write Standard Operating Processes as necessary.
  • Maintain employee confidence and protects operations by keeping financial information confidential.
  • Supervise two administrative staff.
  • Perform other duties as required.

Requirements:

  • Bachelor degree with 2-4 years related experience.
  • 1-3 years HR/Payroll experience.
  • Ability to identify complex problems and review related information to develop recommendations and implement solutions.
  • Self-direction; proven ability to prioritize work and manage deadlines independently.
  • Ability to understand and translate best practices into standard operating procedures.
  • Excellent interpersonal and written communication skills required.
  • High degree of professionalism and discretion.

Benefits: We value our employees’ time and efforts. Our commitment to your success is enhanced by our competitive compensation (commensurate with experience) in addition to a benefits package including:

  • Paid time off – 20 days
  • 13 Paid Holidays
  • Medical, Dental and Vision benefits
  • 403(b) 8.5% of salary, no match required

We work to maintain the best possible environment for our employees, and strive to provide a collaborative, creative environment where each person feels encouraged to contribute to our processes, decisions, planning and culture.

To Apply:
Qualified candidates are encouraged to forward their cover letter, resume and salary requirement to: careers@pkdcure.org. Please reference “Controller” in the subject line. EEO Employer/VETS/Disabled Minorities are encouraged to apply. We thank all respondents for their interest in the PKD Foundation. For more information about the PKD Foundation, visit our website at pkdcure.org.