Advocacy
We dedicate resources to ensuring Congress and federal agencies are aware of the needs of the PKD community. Our goal is to further legislation, regulation and federal funding opportunities to improve the lives of everyone in the PKD community. Join us in educating your elected officials about how they can help fight PKD. Your voice is vital to raising awareness of PKD and helping increase research dollars to bring treatments and therapies to patients, and to provide the best care for those who are reliant on dialysis or a kidney transplant to stay alive.
Why is advocacy important?
With so many people and groups competing for the attention, it is critical PKD patients make their voices heard. We encourage people with PKD and those who care about them to meet with their congressional representatives because just one personal story and one relationship can make a significant difference.
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Hear from our advocates Read this story »
Patti Ruffin exemplifies the importance of advocates meeting with members of Congress to fight for PKD legislature--hear more about her experience on the Hill.