Advocacy

We dedicate resources to ensuring Congress and federal agencies are aware of the needs of the PKD community. Our goal is to further legislation, regulation and federal funding opportunities to improve the lives of everyone in the PKD community. Join us in educating your elected officials about how they can help fight PKD. Your voice is vital to raising awareness of PKD and helping increase research dollars to bring treatments and therapies to patients, and to provide the best care for those who are reliant on dialysis or a kidney transplant to stay alive.

Why is advocacy important?

With so many people and groups competing for attention, it is critical to make your voices heard. We encourage people to meet with their representatives because it can make a significant difference.

Federal Research Funding

We are focused on furthering legislation, regulation, and federal funding to improve the lives of the PKD community.

Advocacy Champion Network

Learn about the patients, family members, and clinicians dedicated to improving the lives of people living with PKD.

Get notified of opportunities to raise your voice for PKD patients.

Legislative Priorities

Our legislative and regulatory priorities are guided by our vision to end PKD. Learn more about policy priority core standards.

Tools & Resources

We encourage people with a connection to PKD to engage in advocacy because just one personal story can make a difference.

Page last reviewed October 2020