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PKD Foundation Centers of Excellence

The PKD Centers of Excellence program is based on the belief that the best way to provide PKD-centered care is through patient-focused, comprehensive care coordinated and support by an integrated care team.

PKD Foundation ADPKD Registry

The ADPKD Registry is patient-powered and patient-centered. Patients answer questions about their health and PKD’s impact on their life to help create an essential resource for researchers to develop better outcomes that reflect patient perspectives.

Resources for Caregivers
Pediatric PKD: What Parents Need to Know
  • ADPKD
  • ARPKD
  • Caregivers
  • Children
  • Education
  • Family Life
  • Management
  • PKD
  • PKD Parents
  • PKDCON
  • Staying Healthy
  • Young Children
Pediatric PKD: What Parents Need to Know
Preparing for Transplant: Advice From Those Who’ve Lived It
  • Caregivers
  • Education
  • Family Life
  • Kidney donation
  • Kidney transplant
  • living donation
  • Living donor
  • Living Post-Transplant
  • PKD
  • PKDCON
  • Transplant evaluation
  • Transplantation
Preparing for Transplant: Advice From Those Who’ve Lived It
Understanding the Importance of Self Care for the Caregiver
  • Caregivers
  • Education
  • Family Life
  • Living with PKD
  • Mental Health
  • PKD
  • PKDCON
  • Staying Healthy
  • Wellness
Understanding the Importance of Self Care for the Caregiver
PKDCON Continued: Your Questions Answered
  • 2026
  • ADPKD
  • ARPKD
  • Caregivers
  • Children
  • Clinical Trials
  • Complications
  • Conference
  • Diagnosis
  • Diet
  • Drug Therapy and Treatments
  • Education
  • End Stage Kidney Disease
  • genetic testing
  • Kidney transplant
  • Living Post-Transplant
  • Living with PKD
  • Management
  • Newly Diagnosed
  • Nutrition
  • PKD
  • PKDCON
  • Polycystic Liver Disease
  • Pregnancy
  • Progression
  • Research
  • Tolvaptan
  • Transplantation
  • Webinar
  • Young Children
PKDCON Continued: Your Questions Answered
Confidently Navigating ADPKD: Understanding the New KDIGO Guideline, Decoding ADPKD: Managing ADPKD – Treatments, Lifestyle, & Living Well
  • 2025
  • ADPKD
  • Caregivers
  • Complications
  • Education
  • Living with PKD
  • Newly Diagnosed
  • Polycystic Liver Disease
  • Symptoms
  • The Basics of PKD
  • Webinar
Confidently Navigating ADPKD: Understanding the New KDIGO Guideline, Decoding ADPKD: Managing ADPKD – Treatments, Lifestyle, & Living Well
Confidently Navigating ADPKD: Understanding the New KDIGO Guideline, Decoding ADPKD: Diagnosis, Prognosis, & Genetics
  • 2025
  • ADPKD
  • Caregivers
  • Complications
  • Diagnosis
  • Education
  • genetic testing
  • genetics
  • Living with PKD
  • Newly Diagnosed
  • The Basics of PKD
  • Webinar
Confidently Navigating ADPKD: Understanding the New KDIGO Guideline, Decoding ADPKD: Diagnosis, Prognosis, & Genetics
5 Powerful Updates to the ADPKD Registry
  • ADPKD
  • ADPKD Registry
  • Caregivers
  • Research
5 Powerful Updates to the ADPKD Registry
PKDCON 2023: PKD Manifestations ‘Outside’ of the Kidneys
  • 2023
  • ADPKD
  • Caregivers
  • CHF
  • Children
  • Congenital Hepatic Fibrosis
  • PKD Parents
  • PKDCON
  • Webinar
  • Wellness
  • Young Children
PKDCON 2023: PKD Manifestations ‘Outside’ of the Kidneys
PKDCON 2023: How to Navigate the Emotions of Having a Child Diagnosed with PKD
  • 2023
  • ADPKD
  • ARPKD
  • Caregivers
  • Children
  • PKD
  • PKD Parents
  • PKDCON
  • Webinar
  • Wellness
  • Young Children
PKDCON 2023: How to Navigate the Emotions of Having a Child Diagnosed with PKD
The PKD Foundation does not offer medical advice. The information shared on this website is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We strongly recommend that your care and treatment decisions be made in consultation with your healthcare professional team.