NYC Community COE Event
Griffis Faculty ClubSusan R. Knafel Polycystic Kidney Disease Center Open House for Patients and Families
1:30 pm - 4:30 pm
7:00 pm - 8:00 pm
Join us for an in person meeting focused on connection, conversation and learning.
Join us for an in person meeting focused on connection, conversation and learning.
The Indianapolis PKD community is invited to share your experiences, needs and ideas with our Center of Excellence. This is an opportunity to provide meaningful feedback about what matters most to people living with PKD and help shape how patients and families are supported in the future.
YOU’LL HAVE THE OPPORTUNITY TO:
Share what you need from a PKD Center of Excellence
Tell us what’s working and where there are opportunities to do better
Connect with others in the PKD community.
Judith Maddatu, MD is a board-certified nephrologist with deep experience in polycystic kidney disease.
Hear from Dr. Maddatu about the latest therapies and treatments currently being studied in clinical trials
Your experiences matter. Your questions matter. Your voice can help make PKD care better for everyone.
Susan R. Knafel Polycystic Kidney Disease Center Open House for Patients and Families
Join us for our upcoming community meeting via video conference! Share your journey and hear from others within the PKD community who understand what you are experiencing. We'll share resources to help you manage living with PKD.
Join us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!
Research Update
In honor of National Family Caregivers Month, this webinar will recognize the dedication, challenges, and unique experiences of those providing care to loved ones with PKD, and offer practical, caregiver-centered information and resources to help caregivers feel supported and empowered.