Indianapolis Community Meeting
Carmel Clay Library – Main, Meeting Room CJoin us for an in person meeting focused on connection, conversation and learning.
6:00 pm - 7:00 pm
6:30 pm - 8:30 pm
Join us for an in person meeting focused on connection, conversation and learning.
Join us for an in person meeting focused on connection, conversation and learning.
The Indianapolis PKD community is invited to share your experiences, needs and ideas with our Center of Excellence. This is an opportunity to provide meaningful feedback about what matters most to people living with PKD and help shape how patients and families are supported in the future.
YOU’LL HAVE THE OPPORTUNITY TO:
Share what you need from a PKD Center of Excellence
Tell us what’s working and where there are opportunities to do better
Connect with others in the PKD community.
Judith Maddatu, MD is a board-certified nephrologist with deep experience in polycystic kidney disease.
Hear from Dr. Maddatu about the latest therapies and treatments currently being studied in clinical trials
Your experiences matter. Your questions matter. Your voice can help make PKD care better for everyone.
Join us for an in person meeting focused on connection, conversation and learning.
Meet & Greet with Mount Sinai Partner Clinic: Advances in PKD Care & Diagnosis Updates
Mayo Rochester Video Conference 2026 Updates in PKD A patient-centered education event designed to help people with PKD feel informed and prepared throughout their journey. Hear from experts about diagnosis and early treatment, emerging PKD therapies, strategies for building confidence and capacity to manage your health, and transplant options for PKD patients. Dr Ranine Ghamrawi- Diganosis and Initial Treatment Dr Neera Dahl- Future PKD Treatments Kasey Boehmer, Ph.D, M.P.H. Capacity Coaching Dr Naim Issa, Transplant Options with PKD
Lace up your walking shoes and join us at Sutton Place Park for a fun morning of community, connection, and awareness! This event brings New York City together, uniting hospitals, medical centers, and advocacy organizations from across the city in support of the PKD community.
Join us at the Lakewood National Golf Club on October 26, 2026 for the PKD Applied Underwriters Invitational Golf Event, to raise funds to help end PKD!