Get involved

We are united in the fight to #endPKD. Together, we can:

Help advance critical research for treatments and a cure for PKD.

Educate our elected officials and ask for increased government spending on PKD research, dialysis support, and kidney transplant after care.

Raise awareness to support every person affected by PKD.

Walk for PKD

The Walk for PKD is the nation’s largest gathering of the PKD community and our signature fundraising and public awareness event. Every dollar raised supports PKD research.

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Join the ADPKD Registry

Drive the next medical breakthrough by joining the ADPKD Registry. Through the Registry, you can easily, securely, and confidentially provide information about your ADPKD experience.

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Volunteer with Us

Volunteers are the heart of the PKD community and ensure no one faces polycystic kidney disease alone. We have a variety of virtual and local opportunities available.
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Join #teamPKD

Looking for a hands-on way that you can support PKD research? Fundraise Your Way allows you to take your passion and turn it into a PKD fundraiser.
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Share Your Story

You can help give a voice to a widely unknown disease by sharing your story through Voices of PKD. Your story can inspire others and help spread awareness.
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Subscribe to Advocacy Alerts

Help us further legislation and increase federal funding to improve the lives of those in the PKD community. Sign up to receive emails and texts about important advocacy initiatives.

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Subscribe to ACT Alerts

Move research forward by participating in clinical studies. Receive notifications about studies in your geographic area when you subscribe to Accelerating Clinical Trials (ACT) Alert emails.
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Follow us on Social Media

Stay up-to-date on all things Foundation by following our Facebook, Instagram, LinkedIn, Twitter, and TikTok accounts.

Page last reviewed November 2022