Contact us

Thank you for your interest in learning more about PKD and the PKD Foundation. We look forward to hearing from you soon!

Please note: We do not employ any medical professionals and cannot answer specific medical questions – other than what has been provided by medical advisors on our website and in educational materials, such as PKD Progress. For specific questions regarding your healthcare, please consult your nephrologist.

Contact information

PKD Foundation
1001 E. 101st Terrace, Suite 220
Kansas City, MO 64131

Our office hours are from 8 a.m. to 5 p.m. Central

Toll-free phone: 1.800.PKD.CURE (753.2873)
Local phone: 816.931.2600
Fax: 816.931.8655

Staff directory

Executive Leadership

Andy Betts
Chief Executive Officer

David Baron, Ph.D.
Chief Scientific Officer

Ken McLaughlin, J.D.
Interim Chief Administrative Officer


Trisha Krause
Financial Controller


Desiree White
Director of Integrated Information Systems

Michael Carter
Database Coordinator

Jessica Bond
Quality Assurance Coordinator/Matching Gift Contact

LaTonya Hood
Leadership Gifts Coordinator

Rebecca Martell
Database Coordinator


Robin Strachan
Sr. Director of Leadership Gifts – Great Lakes

Dustin Williams
Director of Leadership Gifts – NE

Susan DeRemer
Director of Leadership Gifts – West

Manuel Perez
Director of Leadership Gifts – South

Sue Full
Senior Director of Community Fundraising

Joe Berrigan
Community Fundraising Specialist

Danielle Rose
Walk for PKD Coordinator

Kit Dawson
Business Intelligence Specialist

Human Resources (HR)

Fredricka McKibben
Director of People Operations and Culture

Marketing and Communications

Sara Bristow
Marketing Strategist

Blaire Ginsburg
Marketing and Communications Coordinator

Glenn McMillan
Graphic Designer

Research and Education

David Baron, Ph.D.
Chief Scientific Officer

Alexis Denny
Director of Government Affairs

Nicole Harr
Director of Patient and Community Engagement

Emily Bates
Administrative Coordinator

Julie Luttman
Volunteer Engagement Specialist

Dana Gillis
Volunteer Engagement Coordinator