Contact us

Thank you for your interest in learning more about PKD and the PKD Foundation. We look forward to hearing from you soon!

Please note: We do not employ any medical professionals and cannot answer specific medical questions – other than what has been provided by medical advisors on our website and in educational materials, such as PKD Progress. For specific questions regarding your healthcare, please consult your nephrologist.

Contact information

PKD Foundation
1001 E. 101st Terrace, Suite 220
Kansas City, MO 64131

Our office hours are from 8 a.m. to 5 p.m. Central

Toll-free phone: 1.800.PKD.CURE (753.2873)
Local phone: 816.931.2600
Fax: 816.931.2600

Staff directory

Executive Leadership

Andy Betts
Chief Executive Officer

David Baron, Ph.D.
Chief Scientific Officer

Amanda Hanova
Chief Operating Officer

Stephanie Sullens
Chief Advancement Officer


Desiree White
Director of Integrated Information Systems

Rebecca Martell
Database Coordinator

Amelia Randel
Database Coordinator


Robin Strachan
Director of Planned Giving

Joe Berrigan
Director of Leadership Gifts – Great Lakes

Susan DeRemer
Director of Leadership Gifts – West

Manuel Perez
Director of Leadership Gifts – South

Kit Dawson
Business Intelligence Strategist

Community Fundraising

Sue Full
Senior Director of Community Fundraising

Lauren Winchester
Director of Creative Projects

Ireland Christensen
Community Fundraising Coordinator

Danielle Rose
Regional Community Fundraising Specialist – Great Lakes

Tierra Hogan
Marketing Specialist

Glenn McMillan
Graphic Designer

Research and Education

Alexis Denny
Director of Government Affairs

Elise Hoover
Director of Research

Nicole Harr
Director of Community Engagement

Dana Gillis
Community Support Specialist

Zseraldina Ferenczi
Community Outreach Coordinator

Administrative Support

Taylor Scoma
Executive Assistant

Richandra Myles
Administrative Support Coordinator

Emily Rosenbach
Administrative Support Coordinator

April Revella
Administrative Support Coordinator