Together

let’s move PKD research forward

What’s new in PKD?

We provide a combination of up-to-date research and detailed information

There’s so much happening in the PKD world — from important advancements in research and science to updates in critical legislation and information about how to manage your health. We got you covered right here.

Keep up to date on the latest news in PKD research and on the progress we are making, hear about important legislation that affects the PKD community, and learn about our education and fundraising events.

What's new?

Washington Summary September 2017

Big Budget Picture Congress has a busy fall schedule. The major proposals include approving spending for FY18, ensuring that federal debts are paid, dealing with immigration, and reducing certain taxes. Congress also may try to change or improve certain parts […]

Research Update from Peter Harris, Ph.D., Mayo Clinic

Advances in Gene Editing; Implications for PKD Presently, treatment options in ADPKD focus on addressing changes in cellular pathways, such as increased proliferation or altered secretion that are thought to promote cystic expansion. However, theoretically in a simple genetic disease, […]

Washington Summary August 2017

Health Care Reform In the early morning of July 28, the Senate failed to approve any changes to the Affordable Care Act (ACA or Obamacare). Majority Leader Mitch McConnell (R-KY) pulled the ACA repeal/replace bill from the legislative calendar for […]

Live a fuller life

There’s hope after a PKD diagnosis and you don’t have to do it alone. Together, we are a strong community that supports one another so we can find hope and live our best lives with PKD. Voices of PKD is a collection of inspiring stories that tell the story of PKD.

Nell GustavsonVoices of PKD

I was diagnosed with PKD in 1987 at the age of 27. This was not a big surprise for me, especially since my father, grandmother and aunt all had the disease. The surprise was who donated a kidney to me—my niece, Liz, whom my older sister had placed for adoption at birth!

We are the
PKD Foundation

We are on a mission to end PKD. To do that, we fund and advocate for research and better health care, we support the PKD community so you can live your best life and we raise awareness to move closer to treatments and a cure.

About Us

Join or organize events

Your support matters!

There are so many ways to get involved with us. Whether you join one of our events or organize your own, it only takes a small step to make a big difference and move us closer to a future without PKD.

Know when
change happens

This is such an exciting time for PKD science! Advancements in PKD research are bountiful and we have the scoop to keep you up to date.