COVID-19 resources for the PKD community
Experience the largest PKD gathering in the country! Join the fun while accelerating work toward treatments and a cure.
Know where to go.
For a higher level of care.
Introducing the PKD Foundation Centers of Excellence.
It's up to us.
There’s a groundbreaking new way to change lives and provide hope. We have the power.
With PKD Connect, no one will ever face polycystic kidney disease alone.
About the PKD Foundation
The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD) and to improving the lives of those it affects. Since 1982, we have proudly funded more than 1,300 research projects and leveraged $1.5B in research funds.
Our mission
WE GIVE HOPE.
We fund research, advocate for patients, and build a community for all impacted by PKD.
Our vision
#endPKD
what is pkd?
Polycystic kidney disease (PKD) affects thousands in the U.S. and millions worldwide but is still relatively unknown.
LIVING WITH PKD
If you or someone you care about is living with PKD, your top priorities are maintaining a high quality of life and managing the disease.
NUTRITION
While a specific diet won’t make polycystic kidneys better, it is ideal to eat a balanced and healthy diet.
Together, we have the power to help end PKD.
If you have ADPKD, there’s a new way you can step up to provide hope today, and for future generations. Share your health records with a few simple steps on the ADPKD Registry. As a community, our health information is essential to research. Linking directly to provider health records means more and better data to power a cure.
More data, more hope
We’re fueling medical advances by adding clinical data to personal experiences.
YOUR PRIVACY
It’s groundbreaking and secure, with all personal identifiers removed from health information.
With PKD Connect, no one will ever face polycystic kidney disease alone.
Because patients, family, and loved ones will always be connected to others who understand firsthand what you’re going through. Whether you are looking for information, resources, or just a shoulder to lean on, PKD Connect gives you the support to keep hope within reach.
COMMUNITY AND SUPPORT
You’re not alone. Find a mentor, call our Hope line, or join a Community.
RESOURCES AND EDUCATION
From diagnosis to dialysis, everything you want to know about PKD.
PARENTS AND CAREGIVERS
Caring for a loved one with PKD can be stressful. We’re here to help.
ADPKD REGISTRY
Move research forward when you join the first U.S. ADPKD Registry.
SHARE YOUR PKD STORY
This year, make it your goal to create a future without PKD. Turn your passion and hobbies into hope. 100% of the funds raised will support life-saving research.
CHALLENGE
Challenge yourself to put an end to PKD. Whether you’re walking a 5K, running a marathon, cycling across the country, or competing in a triathlon, make fundraising for PKD part of your challenge.
DIY
Take a fight against PKD into your own hands. DIY for PKD allows you to combine your creativity with your passion for finding a cure by creating your own personal fundraiser!
CELEBRATIONS
Dedicate your milestone to a cause you’re passionate about: ending PKD. Fundraise when you celebrate your birthday, transplant anniversary, wedding, or other special event.
TRIBUTE
Create a tribute fundraiser to honor someone or remember a loved one who has passed. Fundraise to end PKD in honor, memory, or celebration of someone today.
chicago marathon
Join #teamPKD and sign up for the 2023 Bank of America Chicago Marathon where you can represent the PKD community.
