Walk for PKD

one small step to make a big difference

What’s new in PKD?

We provide a combination of up-to-date research and detailed information

There’s so much happening in the PKD world — from important advancements in research and science to updates in critical legislation and information about how to manage your health. We got you covered right here.

Keep up to date on the latest news in PKD research and on the progress we are making, hear about important legislation that affects the PKD community, and learn about our education and fundraising events.

What's new?
Washington Summary October 2016

Congress has begun its extended recess and will not return to Washington until November 14. The pre-election period provides another opportunity for PKD advocates either to schedule meetings with their two senators and representative or to attend political events prior […]

Washington summary September 2016

Congress returned from its extended recess on Sept. 6, 2016. FY17 Appropriations Congress will not complete work on the bills to fund the NIH and the FDA for fiscal year 2017 (FY17, starting Oct. 1, 2016) until after the November elections. […]

Recent study finds that ADPKD patients face elevated risk of diabetes after a kidney transplant

The Canadian Journal of Diabetes reports a detailed analysis of 12 studies, which comprised 1,379 patients with ADPKD of a total of 9,849 patients who had undergone kidney transplants and found that individuals with ADPKD who undergo a kidney transplant […]

Live a fuller life

There’s hope after a PKD diagnosis and you don’t have to do it alone. Together, we are a strong community that supports one another so we can find hope and live our best lives with PKD. Voices of PKD is a collection of inspiring stories that tell the story of PKD.

A mother’s loveVoices of PKD

Sara Mann is no stranger to the center stage. As an accomplished musician, songwriter and Broadway performer, she has taken her rightful place in that arena on a number of occasions. When she and her husband, Alex, learned they were […]

We are the
PKD Foundation

We are on a mission to end PKD. To do that, we fund and advocate for research and better health care, we support the PKD community so you can live your best life and we raise awareness to move closer to treatments and a cure.

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Your support matters!

There are so many ways to get involved with us. Whether you join one of our events or organize your own, it only takes a small step to make a big difference and move us closer to a future without PKD.

Know when
change happens

This is such an exciting time for PKD science! Advancements in PKD research are bountiful and we have the scoop to keep you up to date.