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The first treatment for ADPKD is here

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What’s new in PKD?

We provide a combination of up-to-date research and detailed information

There’s so much happening in the PKD world — from important advancements in research and science to updates in critical legislation and information about how to manage your health. We got you covered right here.

Keep up to date on the latest news in PKD research and on the progress we are making, hear about important legislation that affects the PKD community, and learn about our education and fundraising events.

What's new?
Washington Summary May 2018

Tolvaptan (brand name JYNARQUE™) In April 2018, the FDA approved the first drug available in the US to treat ADPKD. Tolvaptan is a selective vasopressin V2-receptor antagonist. This means it blocks vasopressin, an anti-diuretic hormone secreted by the pituitary gland, […]

Washington Summary April 2018

PKDF Priorities PKD Foundation is submitting its FY19 funding requests to the House and Senate Appropriations Committees. PKDF is asking Congress to return PKD to the list of eligible research programs under the Department of Defense’s Congressionally Directed Medical Research […]

Washington Summary March 2018

Advocacy Alert Last week, the PKD Foundation asked its advocates to urge Congress to keep PKD on the list of eligible research programs for Fiscal Year 2018 under the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP). Thank you […]

Live a fuller life

There’s hope after a PKD diagnosis and you don’t have to do it alone. Together, we are a strong community that supports one another so we can find hope and live our best lives with PKD. Voices of PKD is a collection of inspiring stories that tell the story of PKD.

Nell GustavsonVoices of PKD

I was diagnosed with PKD in 1987 at the age of 27. This was not a big surprise for me, especially since my father, grandmother and aunt all had the disease. The surprise was who donated a kidney to me—my niece, Liz, whom my older sister had placed for adoption at birth!

We are the
PKD Foundation

We are on a mission to end PKD. To do that, we fund and advocate for research and better health care, we support the PKD community so you can live your best life and we raise awareness to move closer to more treatments and a cure.

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Your support matters!

There are so many ways to get involved with us. Whether you join one of our events or organize your own, it only takes a small step to make a big difference and move us closer to a future without PKD.

Know when
change happens

This is such an exciting time for PKD science! Advancements in PKD research are bountiful and we have the scoop to keep you up to date.