COVID-19 resources for the PKD community



PKD Genetic Testing Patient Survey

Help increase the knowledge of PKD amongst healthcare providers

PKD Foundation Centers of Excellence logo

June 23-25, 2023

We can't wait to see you in Denver! Can't attend? Register for our virtual option!

*Virtual Registration Extended to June 19th!

Centers of Excellence
PKD Foundation Centers of Excellence logo

Know where to go.

For a higher level of care.

Introducing the PKD Foundation Centers of Excellence.

PKDConnect #1
PKD Foundation

With PKD Connect, no one will ever face polycystic kidney disease alone.

ADPKD Registry
ADPKD Registry logo white
Join the nation’s largest ADPKD Registry
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About the PKD Foundation

The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD) and to improving the lives of those it affects. Since 1982, we have proudly funded more than 1,300 research projects and leveraged $1.5B in research funds.

Our mission

We fund research, advocate for patients, and build a community for all impacted by PKD.

Our vision


what is pkd?

Polycystic kidney disease (PKD) affects thousands in the U.S. and millions worldwide but is still relatively unknown.


If you or someone you care about is living with PKD, your top priorities are maintaining a high quality of life and managing the disease.


While a specific diet won’t make polycystic kidneys better, it is ideal to eat a balanced and healthy diet.

Where you go matters.

Finally, patients and families know where to go for next-level ADPKD care. This new program designates nephrology practices and clinics meeting the highest standards of ADPKD care-team criteria set by the PKD Foundation. So you can turn to top experts to manage your disease the best way possible.

A network of hope

Centers of Excellence provide comprehensive, multidisciplinary care that’s coordinated, including individualized plans and follow-up.

Leveraging expertise

Primary care physicians, specialists and other providers now have a network for referrals, partnerships and mentoring to improve care.

Find a Center of Excellence
or Partner Clinic

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With PKD Connect, no one will ever face polycystic kidney disease alone.

Because patients, family, and loved ones will always be connected to others who understand firsthand what you’re going through. Whether you are looking for information, resources, or just a shoulder to lean on, PKD Connect gives you the support to keep hope within reach.


You’re not alone. Find a mentor, call our Hope line, or join a Chapter.


From diagnosis to dialysis, everything you want to know about PKD.


Caring for a loved one with PKD can be stressful. We’re here to help.


Move research forward when you join the first U.S. ADPKD Registry.


This year, make it your goal to create a future without PKD. Turn your passion and hobbies into hope. 100% of the funds raised will support life-saving research.


Challenge yourself to put an end to PKD. Whether you’re walking a 5K, running a marathon, cycling across the country, or competing in a triathlon, make fundraising for PKD part of your challenge.


Take a fight against PKD into your own hands. DIY for PKD allows you to combine your creativity with your passion for finding a cure by creating your own personal fundraiser!


Dedicate your milestone to a cause you’re passionate about: ending PKD. Fundraise when you celebrate your birthday, transplant anniversary, wedding, or other special event.


Create a tribute fundraiser to honor someone or remember a loved one who has passed. Fundraise to end PKD in honor, memory, or celebration of someone today.

chicago marathon

Join #teamPKD and sign up for the 2023 Bank of America Chicago Marathon where you can represent the PKD community.

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