COVID-19 resources for the PKD community

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Giving Tuesday 2023

Make a Difference on Giving Tuesday, November 28, 2023

Donate today to expand PKD research and care resources for the PKD community.
Your gift is matched up to $20,000!

ISN-PKDF Webinar

Join us November 27 at
9 a.m. (CT) for an informational webinar on ADPKD and health equity.

We’re partnering with the International Society of Nephrology to explore the impact of health disparities on the outcomes for ADPKD patients.

Centers of Excellence
PKD Foundation Centers of Excellence logo

Know where to go.

For a higher level of care.

PKD Foundation Centers of Excellence have expanded. Find a center today.

Beneficiary Designation

Create your family's legacy

Create your family’s legacy as PKD champions by listing the PKD Foundation as a beneficiary.

Whether it’s through your retirement plan, life insurance, or even real estate, you can establish a legacy that will transform lives for generations.

Registry 2.0 Launch
PKD Foundation Centers of Excellence logo

It's up to us.

There’s a groundbreaking new way to change lives and provide hope. We have the power.

PKDConnect #1
PKD Foundation

With PKD Connect, no one will ever face polycystic kidney disease alone.

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About the PKD Foundation

The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD) and to improving the lives of those it affects. Since 1982, we have proudly funded more than 1,300 research projects and leveraged $1.5B in research funds.

Our mission

WE GIVE HOPE.
We fund research, advocate for patients, and build a community for all impacted by PKD.

Our vision

#endPKD

what is pkd?

Polycystic kidney disease (PKD) affects thousands in the U.S. and millions worldwide but is still relatively unknown.

LIVING WITH PKD

If you or someone you care about is living with PKD, your top priorities are maintaining a high quality of life and managing the disease.

NUTRITION

While a specific diet won’t make polycystic kidneys better, it is ideal to eat a balanced and healthy diet.

Together, we have the power to help end PKD.

If you have ADPKD, there’s a new way you can step up to provide hope today, and for future generations. Share your health records with a few simple steps on the ADPKD Registry. As a community, our health information is essential to research. Linking directly to provider health records means more and better data to power a cure.

More data, more hope

We’re fueling medical advances by adding clinical data to personal experiences.

YOUR PRIVACY

It’s groundbreaking and secure, with all personal identifiers removed from health information.

With PKD Connect, no one will ever face polycystic kidney disease alone.

Because patients, family, and loved ones will always be connected to others who understand firsthand what you’re going through. Whether you are looking for information, resources, or just a shoulder to lean on, PKD Connect gives you the support to keep hope within reach.

COMMUNITY AND SUPPORT

You’re not alone. Find a mentor, call our Hope line, or join a Community.

RESOURCES AND EDUCATION

From diagnosis to dialysis, everything you want to know about PKD.

PARENTS AND CAREGIVERS

Caring for a loved one with PKD can be stressful. We’re here to help.

ADPKD REGISTRY

Move research forward when you join the first U.S. ADPKD Registry.

SHARE YOUR PKD STORY

This year, make it your goal to create a future without PKD. Turn your passion and hobbies into hope. 100% of the funds raised will support life-saving research.

CHALLENGE

Challenge yourself to put an end to PKD. Whether you’re walking a 5K, running a marathon, cycling across the country, or competing in a triathlon, make fundraising for PKD part of your challenge.

DIY

Take a fight against PKD into your own hands. DIY for PKD allows you to combine your creativity with your passion for finding a cure by creating your own personal fundraiser!

CELEBRATIONS

Dedicate your milestone to a cause you’re passionate about: ending PKD. Fundraise when you celebrate your birthday, transplant anniversary, wedding, or other special event.

TRIBUTE

Create a tribute fundraiser to honor someone or remember a loved one who has passed. Fundraise to end PKD in honor, memory, or celebration of someone today.

chicago marathon

Join #teamPKD and sign up for the 2024 Bank of America Chicago Marathon where you can run to end PKD.

Make a Difference on Giving Tuesday
Giving Tuesday is November 28, 2023. Donate today to expand PKD research and care resources for the PKD community.
Your gift is matched up to $20,000!