COVID-19 resources for the PKD community

Walk for PKD 2024
PKD Foundation Centers of Excellence logo

A Cure is
Our Finish Line

Join people from coast to coast at the largest PKD Foundation fundraising and awareness event!

Centers of Excellence
PKD Foundation Centers of Excellence logo

Know where to go.

For a higher level of care.

PKD Foundation Centers of Excellence have expanded. Find a center today.


ARPKD Voice of the Patient Report

The PKD Foundation has published our first ever ARPKD Voice of the Patient Report.

Beneficiary Designation

Create your family's legacy

Create your family’s legacy as PKD champions by listing the PKD Foundation as a beneficiary.

Whether it’s through your retirement plan, life insurance, or even real estate, you can establish a legacy that will transform lives for generations.

2023 PKD Impact Report

2023 PKD Foundation Annual Impact Report

Read this digital report that highlights our achievements, supporters, and the profound impact we had on the PKD community in 2023.

PKDConnect #1
PKD Foundation

With PKD Connect, no one will ever face polycystic kidney disease alone.

Sign up for PKD News
PKD Foundation logo. Polycystic kidney disease

Sign up for PKD News

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About the PKD Foundation

The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD) and to improving the lives of those it affects. Since 1982, we have proudly funded more than 1,300 research projects and leveraged $1.5B in research funds.

Our mission

We fund research, advocate for patients, and build a community for all impacted by PKD.

Our vision


what is pkd?

Polycystic kidney disease (PKD) affects thousands in the U.S. and millions worldwide but is still relatively unknown.


If you or someone you care about is living with PKD, your top priorities are maintaining a high quality of life and managing the disease.


While a specific diet won’t make polycystic kidneys better, it is ideal to eat a balanced and healthy diet.

Together, we have the power to help end PKD.

If you have ADPKD, there’s a new way you can step up to provide hope today, and for future generations. Share your health records with a few simple steps on the ADPKD Registry. As a community, our health information is essential to research. Linking directly to provider health records means more and better data to power a cure.

More data, more hope

We’re fueling medical advances by adding clinical data to personal experiences.


It’s groundbreaking and secure, with all personal identifiers removed from health information.

With PKD Connect, no one will ever face polycystic kidney disease alone.

Because patients, family, and loved ones will always be connected to others who understand firsthand what you’re going through. Whether you are looking for information, resources, or just a shoulder to lean on, PKD Connect gives you the support to keep hope within reach.


You’re not alone. Find a mentor, call our Hope line, or join a Community.


From diagnosis to dialysis, everything you want to know about PKD.


Caring for a loved one with PKD can be stressful. We’re here to help.


Move research forward when you join the first U.S. ADPKD Registry.


This year, make it your goal to create a future without PKD. Turn your passion and hobbies into hope. Funds raised will support life-saving research.


Challenge yourself to put an end to PKD. Whether you’re walking a 5K, running a marathon, cycling across the country, or competing in a triathlon, make fundraising for PKD part of your challenge.


Take a fight against PKD into your own hands. DIY for PKD allows you to combine your creativity with your passion for finding a cure by creating your own personal fundraiser!


Dedicate your milestone to a cause you’re passionate about: ending PKD. Fundraise when you celebrate your birthday, transplant anniversary, wedding, or other special event.


Create a memorial fundraiser to honor someone or remember a loved one who has passed. Fundraise to end PKD in honor, memory, or celebration of someone today.

chicago marathon

We filled our team for the 2024 Bank of America Chicago Marathon. To support a runner, click the link below.

Experience the largest PKD gathering in the country! Join the fun while accelerating work toward treatments and a cure. Register today!