From Care to Cure

the PKD Foundation is here

What’s new in PKD?

We provide a combination of up-to-date research and detailed information

There’s so much happening in the PKD world — from important advancements in research and science to updates in critical legislation and information about how to manage your health. We got you covered right here.

Keep up to date on the latest news in PKD research and on the progress we are making, hear about important legislation that affects the PKD community, and learn about our education and fundraising events.

What's new?

Washington Summary March 2018

Advocacy Alert Last week, the PKD Foundation asked its advocates to urge Congress to keep PKD on the list of eligible research programs for Fiscal Year 2018 under the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP). Thank you […]

Washington Summary February 2018

Health Research and Other Spending Programs On Feb. 9, Congress approved the Bipartisan Budget Act of 2018 that kept government departments and agencies (such as NIH) open until March 23. The short-term funding bill is part of a larger budget […]

Washington Summary January 2018

Second Session of Congress Begins Congress has returned for what could be a busy 2018. The agenda includes the children’s health program (CHIP) and a number of non-health-related national issues: raising the debt ceiling so the US can pay its […]

Live a fuller life

There’s hope after a PKD diagnosis and you don’t have to do it alone. Together, we are a strong community that supports one another so we can find hope and live our best lives with PKD. Voices of PKD is a collection of inspiring stories that tell the story of PKD.

Nell GustavsonVoices of PKD

I was diagnosed with PKD in 1987 at the age of 27. This was not a big surprise for me, especially since my father, grandmother and aunt all had the disease. The surprise was who donated a kidney to me—my niece, Liz, whom my older sister had placed for adoption at birth!

We are the
PKD Foundation

We are on a mission to end PKD. To do that, we fund and advocate for research and better health care, we support the PKD community so you can live your best life and we raise awareness to move closer to treatments and a cure.

About Us

Join or organize events

Your support matters!

There are so many ways to get involved with us. Whether you join one of our events or organize your own, it only takes a small step to make a big difference and move us closer to a future without PKD.

Know when
change happens

This is such an exciting time for PKD science! Advancements in PKD research are bountiful and we have the scoop to keep you up to date.