Published Jan. 21, 2020 Written by Alexis Denny, Director of Government Affairs PART THREE OF FOUR The effort to address the kidney health crisis in the U.S. started in July when...
June 19–21, 2020
About the Foundation
The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD) and to improving the lives of those it affects. Since 1982, we have proudly funded more than $50 million in PKD research and leveraged $1.5 billion in government funding, while serving our local communities across the country. We are inspired by our mission. And driven by our vision.
Living with PKD
If you or someone you care about is living with PKD, your top priorities are maintaining a high quality of life and managing the disease.
While a specific diet won’t make polycystic kidneys better, it is ideal to eat a balanced and healthy diet.
The first in the U.S., the secure and patient-powered ADPKD Registry will advance research and help us #endPKD.
Since 1982, the Foundation has invested over $50 million in research, clinical and scientific grants, fellowships, and scientific meetings.
Our latest webinar
Pediatric transplant hepatologist, Ryan Fischer, M.D., discusses how the liver of children with ADPKD and ARPKD may be affected, including a look at congenital hepatic fibrosis (CHF).
We’re working with Congress to #endPKD, and we need your help.
The first treatment for ADPKD was approved last year.
Walk for PKD
100% of donations fund life-saving research. Walk with us!
Join us at the biennial conference in San Diego.
PKD HOPE Line
Do you have questions about PKD? Call the PKD HOPE line today and speak with trained PKD Foundation staff.
With PKD Connect, no one will ever face polycystic kidney disease alone. Because patients, family and loved ones will always be connected to others who understand firsthand what you’re going through. Whether you are looking for information, resources or just a shoulder to lean on, PKD Connect gives you the support to keep hope within reach.
Community and Support
You’re not alone. Find a mentor, call our Hope line, or join a Chapter.
Resources and Education
From diagnosis to dialysis, everything you want to know about PKD.
Parents and Caregivers
Caring for a loved one with PKD can be stressful. We’re here to help.
Move research forward when you join the first U.S. ADPKD Registry.
Share your Story
Voices of PKD
This year, make it your goal to create a future without PKD. Turn your passion and hobbies into hope. 100% of the funds raised will support life-saving research.
Take the fight against PKD into your own hands by organizing a local fundraiser. You can do just about anything to raise money for research.
Make this your challenge! Whether you’re a runner, cycler or dodgeball champion, use your activity to make a difference and help end PKD.
Life is worth celebrating. Celebrate a birthday, transplant anniversary, or the life of a loved one by helping us move closer to a cure.
Take advantage of this unique opportunity to run with #teamPKD in the 2019 Bank of America Chicago Marathon this fall.
How will you help #endPKD?