Welcome to the
Our local Communities, and the volunteers who lead them, are the backbone of the PKD community.
Whether you become a local PKD Community leader or simply attend a local event or meeting, don’t wait any longer . . . get involved today!
Find your local PKD Community
What is a Community?
Communities are groups of volunteers — PKD patients, family members and friends just like you — who want to learn, connect and take action with other committed individuals. In fact, Communities have been forming to fight polycystic kidney disease since the 1980s, funding research, telling others about the disease and providing one another with help and hope — a true sense of community.
PKD Parents Virtual Community
The PKD Parents Community, has been serving parents of children with ARPKD and ADPKD since 2000. The PKD Parents Community offers support, compassion and guidance and can help connect families with experts and other local PKD families. Learn More
The PKD Thrive Community was launched in 2022 to bring together young adults with PKD. PKD Thrive offers support, compassion, and a safe place to connect and interact with others that understand where you are in your PKD journey. Learn More
About our Communities
Each community is unique and our volunteers work to provide meaningful opportunities for the local community to gather together in support of each other. Community volunteers in cities across the United States hold events to raise awareness of PKD and money for the PKD Foundation’s programs and services, as well as offer education and support. Our volunteers want to hear from you!
We are a proud member of PKD International, a global alliance of patient organizations dedicated to a cure for polycystic kidney disease (PKD). We are leading the fight against PKD for the millions worldwide by uniting patients and medical professionals committed to ending PKD, providing opportunities to learn the latest on PKD, and supporting the most promising research and clinical trials.
Find International Affiliates here.
Page last reviewed April 2022