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  • ABOUT
    • About the Foundation
    • What is ADPKD
    • What is ARPKD
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  • WHAT WE DO
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    • In the News
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Financial and organizational information

Since our founding in 1982, we have raised millions of dollars toward finding a treatment and a cure for PKD. However, what’s even more important than the money we raise is what we do with it. We are extremely careful with the dollars you have entrusted to our care.

More information

  • Executive leadership
  • Board of Directors
  • Scientific Advisory Committee
  • Financial and organizational information
  • Careers
  • Contact us

View our current Annual Report

View

Financial documents

  • 2019 IRS Form 990
  • 2018 IRS Form 990
  • 2017 IRS Form 990
  • 2016 IRS Form 990
  • 2015 IRS Form 990
  • 2019–20 Audited financial statements
  • 2018–19 Audited financial statements
  • 2017–18 Audited financial statements
  • 2016–17 Audited financial statements
  • 2015–16 Audited financial statements
  • IRS determination letter
  • Conflict of interest policy
  • Gift acceptance policy
  • By-laws

 

Federal tax ID: 43-1266906

Other important documents

  • AFP code of ethics
  • AFP donor bill of rights
  • ePhilanthropy code of ethics
  • NCPG model standards of practice for the charitable gift
  • State fundraising notices
  • Ombudsman (“Whistleblower”) policy
  • Statement of values and code of ethics
  • Industry relations policy

We are the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD to improve the lives of those it affects.

Our vision is to #endPKD.

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ABOUT

About the Foundation
What is ADPKD
What is ARPKD
Living with PKD
Patient Handbook

WHAT WE DO

Research
Advocacy
Education
In the News

ORGANIZATION

Contact
Careers
Financials
Privacy Policy
Terms & Conditions

Together, we can find a cure.

Your gift today gives hope for a cure to millions of people living with PKD and their families. One day, no one’s life will be taken from PKD.

DONATE

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1001 E. 101st Terrace, Suite 220 Kansas City, MO 64131

pkdcure@pkdcure.org

800.PKD.CURE

Mail donations to:

PKD Foundation
PO Box 871847, Kansas City, MO 64187

PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity. Federal tax ID: 43-1266906.

© 2020 PKD Foundation