The Foundation’s financial commitment over the years has seen results on a local, national, and even global level. This includes implementing funding opportunities for emerging investigators, support for innovation, and leveraging funding from prestigious institutions such as the National Institutes of Health and Department of Defense.
Our research team also launched the nation’s largest patient-powered ADPKD Registry and routinely convenes research stakeholders in the PKD Outcomes Consortium. In 2022, the Foundation launched the PKD Centers of Excellence program to ensure access to PKD-specialized care and accelerate the translation of research studies to the clinic.
Together, these programs span from pre-clinical basic science to clinical trials to maximize efforts towards our goal of ending PKD.
Our research team also launched the nation’s largest patient-powered ADPKD Registry and routinely convenes research stakeholders in the PKD Outcomes Consortium. In 2022, the Foundation launched the PKD Centers of Excellence program to ensure access to PKD-specialized care and accelerate the translation of research studies to the clinic.
Together, these programs span from pre-clinical basic science to clinical trials to maximize efforts towards our goal of ending PKD.
Research Updates
Follow our progress on PKD research, treatments, clinical trials, and finding a cure.
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Up-to-Date Information About Treating PKD
We partnered with UptoDate to provide medical professionals with education on PKD.
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ACT Alerts
This email program notifies members of the PKD community about new ADPKD and ARPKD clinical research. Do you have a study open for enrollment?
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Data Resources in PKD Research
By encouraging the utilization of existing datasets, the PKD Foundation will bring new perspectives to PKD research. Learn more here.
Resources
PKD Outcomes Consortium (PKDOC)
The Consortium was created to facilitate clinical trial development; it’s establishing a clear regulatory pathway to evaluate the effectiveness of potential treatments.
Resources
Kaplan Award
See past winners or nominate your peers for the prestigious Lillian Jean Kaplan International Prize for Advancement in the Understanding of PKD.
Research Related Resources
For patients who want to stay up-to-date with research.
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- Newly Diagnosed
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- The Basics of PKD
- ARPKD
- Family Life
- PKD Parents
- Research
- Young Children
Funding Opportunities
The principal goal of our research grant program is the development of clinical interventions for the treatment of PKD. Explore available funding opportunities.
Funded Research
The Research Grant and Fellowship Programs will fund critical research to increase understanding of the genetic and pathological processes involved in PKD
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