COVID-19 resources for the PKD community
June 23-25, 2023
We can't wait to see you in Denver! Can't attend? Register for our virtual option!
*Virtual Registration Extended to June 19th!
Know where to go.
For a higher level of care.
Introducing the PKD Foundation Centers of Excellence.
With PKD Connect, no one will ever face polycystic kidney disease alone.
About the PKD Foundation
The PKD Foundation is the only organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD) and to improving the lives of those it affects. Since 1982, we have proudly funded more than 1,300 research projects and leveraged $1.5B in research funds.
Our mission
WE GIVE HOPE.
We fund research, advocate for patients, and build a community for all impacted by PKD.
Our vision
#endPKD
what is pkd?
Polycystic kidney disease (PKD) affects thousands in the U.S. and millions worldwide but is still relatively unknown.
LIVING WITH PKD
If you or someone you care about is living with PKD, your top priorities are maintaining a high quality of life and managing the disease.
NUTRITION
While a specific diet won’t make polycystic kidneys better, it is ideal to eat a balanced and healthy diet.
Where you go matters.
Finally, patients and families know where to go for next-level ADPKD care. This new program designates nephrology practices and clinics meeting the highest standards of ADPKD care-team criteria set by the PKD Foundation. So you can turn to top experts to manage your disease the best way possible.
A network of hope
Centers of Excellence provide comprehensive, multidisciplinary care that’s coordinated, including individualized plans and follow-up.
Leveraging expertise
Primary care physicians, specialists and other providers now have a network for referrals, partnerships and mentoring to improve care.
Find a Center of Excellence or Partner Clinic
With PKD Connect, no one will ever face polycystic kidney disease alone.
Because patients, family, and loved ones will always be connected to others who understand firsthand what you’re going through. Whether you are looking for information, resources, or just a shoulder to lean on, PKD Connect gives you the support to keep hope within reach.
COMMUNITY AND SUPPORT
You’re not alone. Find a mentor, call our Hope line, or join a Chapter.
RESOURCES AND EDUCATION
From diagnosis to dialysis, everything you want to know about PKD.
PARENTS AND CAREGIVERS
Caring for a loved one with PKD can be stressful. We’re here to help.
ADPKD REGISTRY
Move research forward when you join the first U.S. ADPKD Registry.
SHARE YOUR PKD STORY
This year, make it your goal to create a future without PKD. Turn your passion and hobbies into hope. 100% of the funds raised will support life-saving research.
CHALLENGE
Challenge yourself to put an end to PKD. Whether you’re walking a 5K, running a marathon, cycling across the country, or competing in a triathlon, make fundraising for PKD part of your challenge.
DIY
Take a fight against PKD into your own hands. DIY for PKD allows you to combine your creativity with your passion for finding a cure by creating your own personal fundraiser!
CELEBRATIONS
Dedicate your milestone to a cause you’re passionate about: ending PKD. Fundraise when you celebrate your birthday, transplant anniversary, wedding, or other special event.
TRIBUTE
Create a tribute fundraiser to honor someone or remember a loved one who has passed. Fundraise to end PKD in honor, memory, or celebration of someone today.
chicago marathon
Join #teamPKD and sign up for the 2023 Bank of America Chicago Marathon where you can represent the PKD community.