Kate Williams

My name’s Kate. I have PKD, and my son, Owen, has PKD. So, finding out that first day, everything was really kind of a blur. Our doctor explained what PKD was and then said please don’t go home and Google this, because there’s a lot of information, and most of...

John Ventresca

Several years after I was diagnosed was when I started to feel the effects of PKD. The first issue I noticed was fatigue, and also over time, I noticed more and more back pain. In the afternoon I would notice getting a little drowsy and I would attribute feeling a...

David Birkley

It was the year 2000. A longtime friend of mine noticed that I had sudden weight loss and recommended that I go see a doctor, which I did. My mother had PKD, and I felt it was a good time to get checked. Through testing they found, via ultrasound, that I had had PKD,...
Diana Hartley

Diana Hartley

My husband, Tim, was diagnosed in 2002. In March of 2018, he was eligible to begin the transplant process. He was placed on the list about a year ago and received his new kidney from a living donor on August 19, 2019. Luckily, he never had to start dialysis. Now just...
Jan Elf

Jan Elf

I was diagnosed with PKD when I was 40. My sister was also diagnosed near that time. She was six years older than me. She died five years ago from a stroke. I began dialysis when I was 59, I’m 61 now, and I’ve been on a transplant list for two years. My...