Voices of PKD

Patti Ruffin’s advocacy for PKD draws senator’s Health Aide to the cause

It’s important to have advocates meet with members in Congress, either in DC or in the representatives’ home office, to build a relationship and discuss legislative priorities and funding to NIH. Patti Ruffin, Volunteer Walk Coordinator for the San Antonio […]

PKD Foundation |

Young scientist on mission to find alternative to his own transplant

If Demetri Maxim has anything to say about it, he could be the solution to his own problem. Demetri has PKD. He’s also a prize-winning scientist, budding inventor and patent holder, Olympic ski team hopeful, avid cyclist and drummer. And […]

PKD Foundation |

Living with polycystic kidney disease

By MaryKatherine Michiels-Kibler This article originally ran in the August 2014 issue of Kansas City Health and Wellness magazine. Five years ago, at age 13, I was diagnosed with polycystic kidney disease (PKD) after a series of visits to the […]

PKD Foundation |

Transplant Games provide a way to honor organ donation

The Transplant Games of America is a multi-sport festival event for individuals who have undergone life-saving transplant surgeries. Competition events are open to living donors, organ transplant recipients, bone marrow recipients, and a limited number of corneal and tissue transplant […]

PKD Foundation |

Brightening the future for PKD families

The spring, for many, signals a new start and a perfect time to set new goals for the rest of the year. For 21-year-old Brianna Rodgers of Grapevine, Texas, 2014 is her year to make a difference in the PKD […]

PKD Foundation |

Kissing for a cause

Every wedding is a little different – some couples jump over brooms, break glasses or wear blue. For Karli and Cuyler Franzke, an age-old wedding tradition turned into an opportunity to raise funds to support the PKD Foundation. Several weeks […]

PKD Foundation |

A family tree of PKD

Polycystic kidney disease is a family disease. Like freckles and blue eyes, there’s a chance that a parent will pass it along to their child. Though Barbara Meskin’s family had passed along PKD for many generations, she had no idea […]

PKD Foundation |

A heart of gold

By Trisha Muldoon About Sami Lynn In October 2008, my husband Jason and I found out that we were expecting our first child. In March 2009, we found out that we were having a girl, due mid July 2009. At […]

PKD Foundation |

Serving as a voice for young people with PKD

The average teen is more concerned with school, friends and a ride home from volleyball practice than the health of their renal system. For Kerilyn Benoit, health is at the forefront of her worries. At just 13 years old, Kerilyn […]

PKD Foundation |