Voices of PKD

Debra Dai

My name is Debra and I’m from New York. I was diagnosed at the age of 22 during my pregnancy with my first child. At the time, my mother had PKD and was going through a difficult time. She was […]

PKD Foundation |

JoAnn Villanueva

I write my PKD story on the 14th anniversary of my kidney transplant! I have two sisters, no brothers. I come from a LARGE Irish Catholic family (all raised in Chicago). Like other PKD families, many of my family members […]

PKD Foundation |

Lisa Towler

This month marks 26 years ago I found out I had PKD. It was the second week of my senior year of high school. I’m adopted and several years ago I found some information about my mother’s family. A total […]

PKD Foundation |

Rob Herman

PKD runs in my my mom’s side of the family. It has been devastating to us. My grandfather died from a major stroke caused by PKD. My mom had a major stroke that left her a vegetable at age 35 from […]

PKD Foundation |

Cheryl Flothe

PKD runs in my family through my maternal grandfather’s side—he, his dad, sister, brothers and cousins had/have the disease. Most who came before died with no chance of dialysis or transplants. My mom and uncle died in their early 60s […]

PKD Foundation |

Glenna Frey

I donated my kidney to a stranger April 2017. I have been a nephrology nurse for over 30 years and understand the challenges of living on dialysis. Also, my husband and daughter have polycystic kidney disease. My husband received a […]

PKD Foundation |

Melissa Justice

My daughter, Abigail Musser, was 86 days old when she passed away in July of 2017. She was a twin birth, born at 33 weeks. We found out about her diagnosis while I was 20 weeks pregnant and never expected […]

PKD Foundation |

Noelia Canfara

I was diagnosed with polycystic kidney and liver disease 17 years ago. Since then, I have had several surgeries both on my kidneys and liver to deroof cysts and alleviate symptoms, but my kidneys continued to grow and decline in […]

PKD Foundation |

Selina Borg

I am the fourth generation to be diagnosed with PKD in my family. I got my diagnosis in 2010 when I was 22. My dad, Roland, was diagnosed at the age of 42, and six months ago, at the age […]

PKD Foundation |

John Vallarelli

I was diagnosed in 1993. Initially hospitalized for diverticulitis, I had a CAT scan and the next morning, seven doctors showed up to my room and told me I have PKD. Was I shocked? No; surprised, yes. My mom had […]

PKD Foundation |