Voices of PKD

Rob Herman

PKD runs in my my mom’s side of the family. It has been devastating to us. My grandfather died from a major stroke caused by PKD. My mom had a major stroke that left her a vegetable at age 35 from […]

PKD Foundation |

Cheryl Flothe

PKD runs in my family through my maternal grandfather’s side—he, his dad, sister, brothers and cousins had/have the disease. Most who came before died with no chance of dialysis or transplants. My mom and uncle died in their early 60s […]

PKD Foundation |

Glenna Frey

I donated my kidney to a stranger April 2017. I have been a nephrology nurse for over 30 years and understand the challenges of living on dialysis. Also, my husband and daughter have polycystic kidney disease. My husband received a […]

PKD Foundation |

Noelia Canfara

I was diagnosed with polycystic kidney and liver disease 17 years ago. Since then, I have had several surgeries both on my kidneys and liver to deroof cysts and alleviate symptoms, but my kidneys continued to grow and decline in […]

PKD Foundation |

Selina Borg

I am the fourth generation to be diagnosed with PKD in my family. I got my diagnosis in 2010 when I was 22. My dad, Roland, was diagnosed at the age of 42, and six months ago, at the age […]

PKD Foundation |

John Vallarelli

I was diagnosed in 1993. Initially hospitalized for diverticulitis, I had a CAT scan and the next morning, seven doctors showed up to my room and told me I have PKD. Was I shocked? No; surprised, yes. My mom had […]

PKD Foundation |

Renata Mendes

I was diagnosed 10 years ago. I had low back pain for some weeks, so I went to emergency and they sent me to an orthopedist. After a few days taking orthopedist pills and still dealing with back pain, I […]

PKD Foundation |

Tracey Barbour

I found out I had PKD 10 years and 5 months ago, one month after I got married. A routine blood test showed I had a raised level of creatinine. I didn’t even know what creatinine was. It was 1.8. […]

PKD Foundation |

Chris Dwyer

I found out last year by accident. I had an arthrogram done for a torn hip labrum. Two days later the orthopedic surgeon called and let me know that I had an extensive tear of the labrum and that they […]

PKD Foundation |

Skyla Tanner

I have a disease. I don’t like the way those words sound. So, I don’t speak of it often. In fact, many days I ignore it. Even when my body is screaming loud with signs and symptoms. It’s been 10 […]

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