Voices of PKD

John Vallarelli

I was diagnosed in 1993. Initially hospitalized for diverticulitis, I had a CAT scan and the next morning, seven doctors showed up to my room and told me I have PKD. Was I shocked? No; surprised, yes. My mom had […]

PKD Foundation |

Renata Mendes

I was diagnosed 10 years ago. I had low back pain for some weeks, so I went to emergency and they sent me to an orthopedist. After a few days taking orthopedist pills and still dealing with back pain, I […]

PKD Foundation |

Tracey Barbour

I found out I had PKD 10 years and 5 months ago, one month after I got married. A routine blood test showed I had a raised level of creatinine. I didn’t even know what creatinine was. It was 1.8. […]

PKD Foundation |

Chris Dwyer

I found out last year by accident. I had an arthrogram done for a torn hip labrum. Two days later the orthopedic surgeon called and let me know that I had an extensive tear of the labrum and that they […]

PKD Foundation |

Skyla Tanner

I have a disease. I don’t like the way those words sound. So, I don’t speak of it often. In fact, many days I ignore it. Even when my body is screaming loud with signs and symptoms. It’s been 10 […]

PKD Foundation |

Esmeralda Juarez

I’ve had PKD for over 13 years, but by God’s amazing grace I received a kidney transplant in 2006. I had to go through dialysis for three months. I’ve learned to live with it, but it’s very hard for me […]

PKD Foundation |

Colleen Clark

My husband was diagnosed with PKD in his mid-50s and we were sent to Emory University Hospital in Atlanta. Remarkably, his doctor was Arlene Chapman, a world-renown specialist and scientist. At that time, they only recommended that he cut back […]

PKD Foundation |

Brittany Russo

We found out my daughter Savvy had ADPKD at the age of one. My husband also has ADPKD, as well as his father and sister. I was very frightened for Savvy and I still worry every day how this will […]

PKD Foundation |

Sherry Sbraccia

I am 39 years old, and up until recently, I never gave a second thought to my kidneys and had never heard of PKD. That all changed a couple of years ago. Me and my family were vacationing in Florida […]

PKD Foundation |

Cynthia Conway

I found out I had polycystic kidneys in 1995. I’ve been doing dialysis three times a week for five years. I have three grown children who also have PKD. My firstborn is 47 and his three kids also have the […]

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