Voices of PKD

Nancy Salkeld

In 1996, during exploratory surgery for endometriosis (which would not be confirmed until 15 laters), my surgeon found three fourths of my liver to be covered with cysts. I went through a battery of tests and found that I had […]

PKD Foundation |

Cynthia Christiansen

I participate in the Walk for PKD in memory of my father! He passed from complication of PKD eight years after his kidney transplant. I also walk with the hope to find a cure to support my advancing disease and my children.

PKD Foundation |

Mary Suydam

I have ADPKD. I was blessed to receive a life-giving transplant nearly 6 years ago that gave me a second chance at life. I walk for my mother, who passed away way before her time. I walk for all the PKD patients who wait for a transplant. […]

PKD Foundation |

Jacque English

I was diagnosed with PKD in 2003. I manage my disease with blood pressure medication and regular trips to my nephrologist. My kidneys are getting larger and my function is beginning to decline. Seven years ago this August, my mom […]

PKD Foundation |

Emily Stoll

At my summer family reunion vacation this year, I organized a Party for the PKD Foundation that was sponsored through a Thrivent Financial Action Grant. Through the grant, I got $250 that I used to purchase refreshments for the party, […]

PKD Foundation |

Lisa Mohr

My father, Will, and his two brothers had PKD. Will died in 1980 when I was only 17, and I have very few memories of him other than him being sick. He and my mother, Audra, had four children. My […]

PKD Foundation |

Stephanie Smetana

My earliest memory of my mom suffering the effects of PKD was of her laying on our couch crying in pain as another cyst had burst. My mom is not a crier. I never got to meet my maternal grandmother […]

PKD Foundation |

Patti Ruffin

Seeing five family members suffer from PKD has given me the passion to carry on the legacy that they couldn’t because they ran out of time. I can’t control the fact that I have PKD, but I can control how […]

PKD Foundation |

Maureen Bickings

PKD is not be allowed to beat me! Diagnosed in my thirties with a husband, 3 children and life in full swing, I was terrified! Life changed, not abruptly at first, but slowly. Over the span of a few years […]

PKD Foundation |

Nell Gustavson

I was diagnosed with PKD in 1987 at the age of 27. This was not a big surprise for me, especially since my father, grandmother and aunt all had the disease. The surprise was who donated a kidney to me—my niece, Liz, whom my older sister had placed for adoption at birth!

PKD Foundation |