Darlene Vandenbergh

Darlene Vandenbergh

My father was diagnosed with PKD in the 1990s when the only thing we knew about PKD was cysts on kidneys, dialysis, kidney transplant, that it was hereditary and that it affected many organs in the body. My dad lost his battle with PKD in 2001 after being on dialysis...
Amber-lee Kate Petersen

Amber-lee Kate Petersen

My name is Amber-lee Kate Petersen, 18 years old, and I live in South Africa. In my final year of high school, I fell incredibly ill. I experienced excruciating pain in my abdomen area. I was kept in a hospital for more than two days, and to be frank, the pain was...
Christopher Nuzzo

Christopher Nuzzo

My name is Christopher and I have polycystic kidney disease. I am 20 years old and go to school at Manhattan College to study media production. I always knew my family had a history with PKD because my grandmother had gotten a successful transplant years before. My...
Jerry Petersheim

Jerry Petersheim

PKD started with my grandfather, who died from the disease at the age of 49. He and my grandmother had twelve children, of whom six had PKD. Three aunts died around the age of 50 without the availability of dialysis. A fourth aunt was on hemodialysis for about 20...
Tilia Sanchez

Tilia Sanchez

My name is Tilia, and I have Stage 5 PKD. I was diagnosed when I was about 13 years old and did not know I would be at this stage of my disease at this age. My life consists of many, many doctor visits, unexpected hospitalizations. I’ve had many blood...