by admin | Jul 8, 2020 | Uncategorized
It was the year 2000. A longtime friend of mine noticed that I had sudden weight loss and recommended that I go see a doctor, which I did. My mother had PKD, and I felt it was a good time to get checked. Through testing they found, via ultrasound, that I had had PKD,...
by admin | Nov 11, 2019 | ADPKD, Transplantation
My husband, Tim, was diagnosed in 2002. In March of 2018, he was eligible to begin the transplant process. He was placed on the list about a year ago and received his new kidney from a living donor on August 19, 2019. Luckily, he never had to start dialysis. Now just...
by admin | Oct 28, 2019 | ADPKD, Living with PKD
I was diagnosed with PKD when I was 40. My sister was also diagnosed near that time. She was six years older than me. She died five years ago from a stroke. I began dialysis when I was 59, I’m 61 now, and I’ve been on a transplant list for two years. My...
by admin | Oct 14, 2019 | Living with PKD, Transplantation
My father was diagnosed with PKD in the 1990s when the only thing we knew about PKD was cysts on kidneys, dialysis, kidney transplant, that it was hereditary and that it affected many organs in the body. My dad lost his battle with PKD in 2001 after being on dialysis...
by admin | Oct 1, 2019 | PKD Youth
My name is Amber-lee Kate Petersen, 18 years old, and I live in South Africa. In my final year of high school, I fell incredibly ill. I experienced excruciating pain in my abdomen area. I was kept in a hospital for more than two days, and to be frank, the pain was...
