Mary Suydam

Mary Suydam

I have ADPKD. I was blessed to receive a life-giving transplant nearly 6 years ago that gave me a second chance at life. I walk for my mother, who passed away way before her time. I walk for all the PKD patients who wait for a transplant. I walk for my children, so...
Jacque English

Jacque English

I was diagnosed with PKD in 2003. I manage my disease with blood pressure medication and regular trips to my nephrologist. My kidneys are getting larger and my function is beginning to decline. Seven years ago this August, my mom passed away from complications from...
Emily Stoll

Emily Stoll

At my summer family reunion vacation this year, I organized a Party for the PKD Foundation that was sponsored through a Thrivent Financial Action Grant. Through the grant, I got $250 that I used to purchase refreshments for the party, and then about 45 adults and 15...
Lisa Mohr

Lisa Mohr

My father, Will, and his two brothers had PKD. Will died in 1980 when I was only 17, and I have very few memories of him other than him being sick. He and my mother, Audra, had four children. My oldest brother, Mark, does not have PKD. My other brother, Walkin’...
Stephanie Smetana

Stephanie Smetana

My earliest memory of my mom suffering the effects of PKD was of her laying on our couch crying in pain as another cyst had burst. My mom is not a crier. I never got to meet my maternal grandmother and I have lost several aunts and uncles to this disease. My mom was...