by admin | Aug 17, 2017 | ADPKD, Living with PKD
Pedaling to Cure PKD Last month, friends Thomas MacAulay, Bill King, Mike Bizal, Ed Williams, Art Berger, and Chuck Mattioni set out on an 18-day biking Tour down the Pacific Coast Highway from Seattle to San Diego to raise awareness for PKD. This epic journey, which...
by admin | Aug 17, 2017 | ADPKD, Living with PKD
My best friend is giving me the gift of life It’s official: I have a living donor. There have been very few times in my life that so few words have held such tremendous meaning and have brought such profound change to my life. I have said these words with tears...
by admin | Aug 17, 2017 | ADPKD, Living with PKD
Hiking to end PKD: Paul Chapman When someone you love has been affected by PKD, one of the most powerful ways you can help fight for them is by raising funds toward research. Whether you donate by yourself, host an event or take on a challenge that inspires others to...
by admin | Aug 17, 2017 | Living with PKD
Why I Walk: Meeting milestones to fund research This year in the National Capital Chapter, one team is celebrating some major milestones in their contributions to the Walk for PKD. We recently sat down with team captain Peggy Krusell to learn more about these amazing...
by admin | Aug 17, 2017 | Uncategorized
Gene Okun Meet Gene Okun! Gene has PKD, and so did his father. Since his diagnosis, Gene’s kidneys have grown big (doctors say they may be the world’s largest) and dumb (functioning at only 18 percent). Currently in search of a living donor, Gene is passionate about...
