by admin | Aug 21, 2017 | ADPKD, Just Diagnosed, Living with PKD
At my summer family reunion vacation this year, I organized a Party for the PKD Foundation that was sponsored through a Thrivent Financial Action Grant. Through the grant, I got $250 that I used to purchase refreshments for the party, and then about 45 adults and 15...
by admin | Aug 21, 2017 | ADPKD, Living with PKD, Transplantation
My father, Will, and his two brothers had PKD. Will died in 1980 when I was only 17, and I have very few memories of him other than him being sick. He and my mother, Audra, had four children. My oldest brother, Mark, does not have PKD. My other brother, Walkin’...
by admin | Aug 21, 2017 | Dialysis, Living with PKD, Transplantation
My earliest memory of my mom suffering the effects of PKD was of her laying on our couch crying in pain as another cyst had burst. My mom is not a crier. I never got to meet my maternal grandmother and I have lost several aunts and uncles to this disease. My mom was...
by admin | Aug 21, 2017 | ADPKD, Dialysis, Transplantation
Seeing five family members suffer from PKD has given me the passion to carry on the legacy that they couldn’t because they ran out of time. I can’t control the fact that I have PKD, but I can control how I live with PKD. After two years on dialysis due to...
by admin | Aug 21, 2017 | ADPKD, Living with PKD
PKD is not be allowed to beat me! Diagnosed in my thirties with a husband, 3 children and life in full swing, I was terrified! Life changed, not abruptly at first, but slowly. Over the span of a few years I grew tired and became pained and a faint memory of who I used...
