by admin | Jun 2, 2016 | ARPKD, PKD Parents
I volunteer for the PKD Foundation not only for my daughter who has autosomal recessive PKD (ARPKD), but all of the children out there that have this terrible disease. A relatively rare form of PKD, ARPKD affects approximately 1 in 20,000 children, and often causes...
by admin | Jun 2, 2016 | ADPKD, Living with PKD, PKD Parents
I am a National Guardsman and Army veteran and had just finished two deployments in Saudi Arabia when I was diagnosed with PKD in 1995. At the time, my only symptom was high blood pressure. Eleven years later, those symptoms began to worsen. I was slated to deploy to...
by admin | Jun 2, 2016 | ADPKD, Living with PKD
I can honestly say that the satisfaction I receive staying actively engaged as a volunteer in the PKD Foundation’s mission to find treatments and a cure for PKD far outweighs the work element by a long shot. Whether it’s rolling up my sleeves to organize a...
by admin | Jun 2, 2016 | ADPKD, Living with PKD
I recently lost my mother to a long hard fight with PKD and the lack of public awareness of the disease always amazed me. I decided to volunteer with the goal to build awareness and provide support to those who are currently fighting the disease in the Chicago area....
by admin | Jun 2, 2016 | ADPKD, Dialysis, Living with PKD, Transplantation
When I was younger, I knew my dad had an illness but I didn’t really understand what PKD was. He is one of 11 children, and we were always told it was a spontaneous mutation and he was the only one in his family with PKD. I found out I had PKD when I was 12....
