by Sydney Johnston | Sep 4, 2023 | ADPKD, ARPKD, Awareness
Published on September 5, 2023 | Today, we celebrate PKD Awareness Day. While polycystic kidney disease (PKD) affects millions of lives worldwide, yet its awareness often remains overshadowed by more well-known health concerns. Every September 4, PKD Awareness Day...
by Sydney Johnston | Dec 1, 2022 | ARPKD, Caregivers
Published on December 1, 2022 | How do you know when it’s time to skip waiting for a doctor’s appointment and going straight to the ER? That’s a decision many parents face as caregivers to children with ARPKD. There are a few things that can help you...
by Sydney Johnston | Oct 15, 2022 | ARPKD, Caregivers, Family Life
Published on October 15, 2022 | Today is Pregnancy and Infant Loss Remembrance Day. Every October 15, we honor we honor lost pregnancies and infant deaths which includes miscarriages, still births, and of course, ARPKD. A rare genetic disorder, autosomal recessive...
by Sydney Johnston | Sep 13, 2022 | ARPKD
Published on September 13, 2022 | At the age of 5, Ian Jones (name changed for privacy) was diagnosed with ARPKD. During a routine trip to his pediatrician, his mother mentioned that Ian was having a lot of trouble staying dry at night. Tests revealed that he...
by Sydney Johnston | Dec 7, 2021 | ARPKD, Family Life
Published on December 7, 2021 | Since Kari Lusby’s son, Honor, was diagnosed with PKD at age 4, she and her family have managed his disease by focusing on the main tenets of good health. Nutrition, hydration, movement, sleep, mindset, and mental toughness. As Honor...
by Sydney Johnston | Nov 15, 2021 | ARPKD, Research
Published on November 16, 2021 | The PKD Foundation’s principal mission is to support basic, translational, and clinical research that will benefit patients with autosomal dominant and autosomal recessive polycystic kidney disease (ADPKD and ARPKD). This mission is...
