Losing a Child with ARPKD

Losing a Child with ARPKD

Published on October 15, 2022 | Today is Pregnancy and Infant Loss Remembrance Day. Every October 15, we honor we honor lost pregnancies and infant deaths which includes miscarriages, still births, and of course, ARPKD. A rare genetic disorder, autosomal recessive...
Should You Enroll Your Child in a Clinical Study?

Should You Enroll Your Child in a Clinical Study?

  Published on September 13, 2022 | At the age of 5, Ian Jones (name changed for privacy) was diagnosed with ARPKD. During a routine trip to his pediatrician, his mother mentioned that Ian was having a lot of trouble staying dry at night. Tests revealed that he...
Helping Your Teens Manage PKD

Helping Your Teens Manage PKD

Published on December 7, 2021 | Since Kari Lusby’s son, Honor, was diagnosed with PKD at age 4, she and her family have managed his disease by focusing on the main tenets of good health. Nutrition, hydration, movement, sleep, mindset, and mental toughness. As Honor...
Researcher Spotlight: Melissa Little, Ph.D.

Researcher Spotlight: Melissa Little, Ph.D.

Published on November 16, 2021 | The PKD Foundation’s principal mission is to support basic, translational, and clinical research that will benefit patients with autosomal dominant and autosomal recessive polycystic kidney disease (ADPKD and ARPKD). This mission is...
Running a Marathon for PKD

Running a Marathon for PKD

Published on March 30, 2021 | What comes to mind when you think of ways to raise awareness of PKD? Attending the Walk for PKD, posting kidney facts on social media? As the spring weather settles in, there’s another active way to support awareness—running a...
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