Navigating Emergency Care for ARPKD

Navigating Emergency Care for ARPKD

Published on December 1, 2022 | How do you know when it’s time to skip waiting for a doctor’s appointment and going straight to the ER? That’s a decision many parents face as caregivers to children with ARPKD. There are a few things that can help you...
Losing a Child with ARPKD

Losing a Child with ARPKD

Published on October 15, 2022 | Today is Pregnancy and Infant Loss Remembrance Day. Every October 15, we honor we honor lost pregnancies and infant deaths which includes miscarriages, still births, and of course, ARPKD. A rare genetic disorder, autosomal recessive...
National Family Caregivers Month

National Family Caregivers Month

Published on November 9, 2021 | November is National Family Caregivers Month. During this month, we recognize the important role of family caregivers. It offers an opportunity to raise awareness of caregiving issues, educate communities, and increase support for...
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