by Sydney Johnston | May 25, 2023 | Research
Published on May 23, 2023 | On May 10, the ongoing FALCON clinical trial was terminated early. FALCON is a Phase 3 clinical study evaluating the effectiveness and safety of bardoxolone methyl (an oral investigational drug) in patients with ADPKD. The study aimed for...
by Sydney Johnston | May 11, 2023 | Advocacy
Published on May 11, 2023 | Last month, PKD advocates from coast to coast participated in Virtual Advocacy Day 2023. Through virtual meetings, patients, friends, researchers, and PKD Foundation staff united to share our community’s needs with Congress....
by Sydney Johnston | Mar 30, 2023 | Advocacy
Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. Advocacy plays an important part, too. Our Advocacy Champions Network connects PKD advocates to their local legislators, helping further PKD-centered legislation. In...
by Sydney Johnston | Mar 9, 2023 | Awareness, Staying Healthy
Published on March 9, 2023 | Today is World Kidney Day. Each year, the World Kidney Day Joint Steering Committee selects a topic to highlight awareness of kidney health around the world. For 2023, they chose the topic, “preparing for the unexpected, supporting the...
by Sydney Johnston | Feb 21, 2023 | Advocacy
Published on February 21, 2023 | Last spring, we hosted our first Virtual Advocacy Day. This event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the PKD...
