by Sydney Johnston | May 24, 2022 | Awareness, Education
Published on May 24, 2022 | May is Mental Health Awareness Month. With chronic illnesses, like ARPKD and ADPKD, mental health is an important factor of your overall care plan. Whether you’re a patient with PKD, caregiver, or family member, taking charge of your...
by Sydney Johnston | May 17, 2022 | Research
Published on May 17, 2022 | Each year, tens of thousands of patients need organ transplants. However, the supply of available organs is much smaller than the demand. In order to combat the tremendous shortage of organs available for transplantation, researchers are...
by Sydney Johnston | May 11, 2022 | Advocacy
Published on May 11, 2022 | On April 27, The PKD Foundation hosted Virtual Advocacy Day. This free event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the...
by Sydney Johnston | Apr 26, 2022 | Transplantation
Published on April 26, 2022 | For 30 years, Klee Kleber and Craig Gile have been friends. Like the estimated 600,000 adults in the United States, Klee has autosomal dominant polycystic kidney disease (ADPKD). And Craig’s remained a steadfast friend on his...
by Sydney Johnston | Apr 19, 2022 | Awareness
Published on April 19, 2022 | When it comes to polycystic kidney disease, we all want to feel like we’re making a difference. Some of join clinical trials, others volunteer with the Walk for PKD or serve as peer mentors. But Glenn Frommer had something big in...
