by Sydney Johnston | Jul 13, 2021 | Awareness, Walk for PKD
Published July 13, 2021 | For over 20 years, the Walk for PKD has thrived as the PKDF’s signature fundraising and public awareness event. Last year, the COVID-19 pandemic meant changing the Walk for PKD from an in-person event to virtual. We couldn’t be more...
by Sydney Johnston | Jul 8, 2021 | Awareness, DIY for PKD
Published July 08, 2021 | When you receive a diagnosis, it’s easy to focus on the negatives. Instead of being pessimistic, Rob Herman is focused on creating change for PKD. Today, he details his experience with PKD, how he spreads PKD awareness, and his creative...
by Sydney Johnston | Jun 29, 2021 | Research
Published on June 29, 2021 | On June 1, the STAGED-PKD study was halted due to an inability to meet futility criteria. The study was looking at an investigational drug called venglustat to treat ADPKD. Over 500 patients signed up to participate. What does it mean to...
by Sydney Johnston | Jun 22, 2021 | Research
Published on June 22, 2021 Xiangqin Cui, Ph.D., Emory University How did you first get involved in PKD research? Xiangqin: When I was a postdoc in Dr. Gary Churchill’s lab at the Jackson Laboratory, Dr. Churchill had collaborations with Dr. Lisa Guay-Woodford...
by Sydney Johnston | Jun 15, 2021 | Advocacy
Published on June 15, 2021 | We’ve seen firsthand the power of collaboration to enact meaningful change in health care. By pulling together institutions and advocates, we can transform policy for kidney patients and living donors. During the last Congress, the PKD...
