by Sydney Johnston | Jan 12, 2021 | ADPKD, Research
Published January 12, 2021 Sorin Fedeles, M.S., Ph.D., Yale University How did you first get involved in PKD research? Sorin: When I first came to Yale, my main goal was to undertake biomedical research studies rooted in asking the right questions and pursuing the...
by Sydney Johnston | Jan 5, 2021 | ADPKD, Research
Published on January 5, 2020 | Research is a term often thrown around to describe everything from complex, controlled experiments to some light Google searching to find your favorite celebrity’s height. When we consider the value of medical research, though, it’s...
by Sydney Johnston | Dec 17, 2020 | Education, Knowledge, Research
Published December 17, 2020 | While distribution of the Pfizer COVID-19 vaccine across the country has begun, many in the PKD community have questions about the COVID-19 vaccine. Chris Rusconi, Ph.D., chief research officer at the PKD Foundation, sits down with...
by Sydney Johnston | Sep 8, 2020 | ADPKD Registry, Awareness, Research
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could learn about their experience with the disease in a standardized format. We wanted to make research more...
by Sydney Johnston | Aug 25, 2020 | Education, Research
Published August 25, 2020 | When it comes to living with PKD, maintaining a high quality of life while balancing PKD pain can be challenging. Having a well-balanced diet, staying physically active, and keeping up-to-date on the latest research and recommendations is...
by Sydney Johnston | Aug 4, 2020 | Q and A, Research
Published August 4, 2020 Taka Saigusa, M.D., University of Alabama at Birmingham How did you first get involved in PKD research? Taka: I worked as a clinician in Japan for quite some time before I got involved in research. My first exposure to PKD research was...