by Sydney Johnston | Sep 8, 2020 | ADPKD Registry, Awareness, Research
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could learn about their experience with the disease in a standardized format. We wanted to make research more...
by Sydney Johnston | Aug 25, 2020 | Education, Research
Published August 25, 2020 | When it comes to living with PKD, maintaining a high quality of life while balancing PKD pain can be challenging. Having a well-balanced diet, staying physically active, and keeping up-to-date on the latest research and recommendations is...
by Sydney Johnston | Aug 4, 2020 | Q and A, Research
Published August 4, 2020 Taka Saigusa, M.D., University of Alabama at Birmingham How did you first get involved in PKD research? Taka: I worked as a clinician in Japan for quite some time before I got involved in research. My first exposure to PKD research was...
by Sydney Johnston | Jul 28, 2020 | Q and A, Research
Published July 28, 2020 | Funding research is a primary function of the PKD Foundation. Each year, a research grant review panel combs through applications to determine which PKD-focused projects will receive funding. For the first time, PKD patients and caregivers...
by Sydney Johnston | Jul 14, 2020 | ARPKD, Q and A, Research
Published July 14, 2020 Rebecca Walker, Ph.D., University of Maryland How did you first get involved in PKD research? Rebecca: I did my doctorate in Dr. Dominic Norris’ lab in Oxford, UK. His lab focuses on “cilia in development and disease,” and had recently worked...
by Sydney Johnston | Jun 9, 2020 | Q and A, Research
Published June 9, 2020 Laurel Willig, M.D., Children’s Mercy How did you first get involved in PKD research? Laurel: I have had a strong interest in the genetics of pediatric renal disease since fellowship. When I started clinical practice, seeing PKD patients...
