If you or someone you care about has just been diagnosed with PKD, you probably have a lot of questions. You may be feeling overwhelmed with all of the information and need some help figuring out what questions you should ask first. The PKD Foundation is here to help you learn about PKD and how to manage the disease while maintaining a high quality of life.

PKD Connect

Your first stop for all things PKD. Explore educational articles and webinars and connect with the PKD community.

Resource Library

We are committed to providing patients with the education they need. These resources will answer some of your most specific questions about the disease.


The PKD Foundation Blog focuses on education, awareness, research, and advocacy. Learn from Foundation staff, contributing authors, and PKD patients.

Patient handbooks

ADPKD Patient HandbookARPKD Patient Handbook

Education updates

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Page last reviewed November 2022