by Sydney Johnston | Nov 2, 2023 | Advocacy, Transplantation
Published on November 1, 2023 | Today, Representatives Joe Wilson (R-SC-02) and Jerrold Nadler (D-NY-12) introduced the Living Organ Donor Tax Credit Act of 2023. If it passes, this legislation would provide a one-time, reimbursable tax credit of up to $5,000 to...
by Sydney Johnston | Oct 5, 2023 | Advocacy, Transplantation
Published on October 3, 2023 | On Friday, September 22, 2023, President Biden signed the Securing the U.S. Organ Procurement and Transplantation Network Act (P.L. 118-140) into law. Through this law, we’ll modernize and improve the Organ Procurement and...
by Sydney Johnston | Sep 14, 2023 | Advocacy
Published on September 14, 2023 | Aside from funding research, one of the best ways to drive change in the PKD community is through advocacy. One way you can take part in PKD advocacy is by joining the Advocacy Champions Network (ACN). Applications are now open for...
by Sydney Johnston | May 11, 2023 | Advocacy
Published on May 11, 2023 | Last month, PKD advocates from coast to coast participated in Virtual Advocacy Day 2023. Through virtual meetings, patients, friends, researchers, and PKD Foundation staff united to share our community’s needs with Congress. For those...
by Sydney Johnston | Mar 30, 2023 | Advocacy
Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. Advocacy plays an important part, too. Our Advocacy Champions Network connects PKD advocates to their local legislators, helping further PKD-centered legislation. In...
by Sydney Johnston | Feb 21, 2023 | Advocacy
Published on February 21, 2023 | Last spring, we hosted our first Virtual Advocacy Day. This event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the PKD...
