by Sydney Johnston | May 11, 2023 | Advocacy
Published on May 11, 2023 | Last month, PKD advocates from coast to coast participated in Virtual Advocacy Day 2023. Through virtual meetings, patients, friends, researchers, and PKD Foundation staff united to share our community’s needs with Congress....
by Sydney Johnston | Mar 30, 2023 | Advocacy
Published on March 30, 2023 | In order to change the future of PKD, it takes more than research. Advocacy plays an important part, too. Our Advocacy Champions Network connects PKD advocates to their local legislators, helping further PKD-centered legislation. In...
by Sydney Johnston | Feb 21, 2023 | Advocacy
Published on February 21, 2023 | Last spring, we hosted our first Virtual Advocacy Day. This event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the PKD...
by Sydney Johnston | Dec 20, 2022 | Advocacy
Published December 20, 2022 | At the ACN Awards, the PKD Foundation honors Members of Congress and Advocacy Champions who went above and beyond in 2022. These awardees were dedicated to raising awareness for our community and supporting policies to improve the...
by Sydney Johnston | Nov 1, 2022 | Advocacy, Awareness
Published on November 1, 2022 | This year, the PKD Foundation created the Peer Ambassadors program. Established to build new bridges between the Foundation and previously underserved communities. Recently, two Peer Ambassadors, Tatiana Mangwi and Alyssia Gomez,...
by Sydney Johnston | Oct 27, 2022 | Advocacy
Published October 27, 2022 | On June 30, the FY23 HouseLabor, Health and Human Services, and Education (LHHS) Appropriations bill passed the Appropriations Committee. The bill report language includes a $5 million increase to support the chronic kidney disease...
