2022 Advocacy Champion Network Awards

2022 Advocacy Champion Network Awards

Published December 20, 2022 | At the ACN Awards, the PKD Foundation honors Members of Congress and Advocacy Champions who went above and beyond in 2022. These awardees were dedicated to raising awareness for our community and supporting policies to improve the...
FY23 PKD Advocacy Update

FY23 PKD Advocacy Update

Published October 27, 2022 | On June 30, the FY23 HouseLabor, Health and Human Services, and Education (LHHS) Appropriations bill passed the Appropriations Committee. The bill report language includes a $5 million increase to support the chronic kidney disease...
ACN Spotlight: Lainie Esquivel

ACN Spotlight: Lainie Esquivel

Published on June 7, 2022 | In order to advocate for our community, we formed the Advocacy Champions Network (ACN). The ACN connects advocates to their local legislators, helping further PKD-centered legislation. Each member has their own unique path to advocacy....
Virtual Advocacy Day 2022 Recap

Virtual Advocacy Day 2022 Recap

Published on May 11, 2022 | On April 27, The PKD Foundation hosted Virtual Advocacy Day. This free event was open to every member of the PKD community—patient, caregiver, researcher, etc. Together, they met with federal lawmakers around the country to advocate for the...
ACN Spotlight: Alix Piccirilli

ACN Spotlight: Alix Piccirilli

Published on April 5, 2022 | Launched in 2020, the Advocacy Champions Network (ACN) is an exclusive community of patients, family members, and clinicians dedicated to improving the lives of people living with PKD. The inaugural ACN class consisted of 36 members from...
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