by Sydney Johnston | Dec 1, 2022 | ARPKD, Caregivers
Published on December 1, 2022 | How do you know when it’s time to skip waiting for a doctor’s appointment and going straight to the ER? That’s a decision many parents face as caregivers to children with ARPKD. There are a few things that can help you...
by Sydney Johnston | Nov 22, 2022 | PKD Foundation News
Published on November 22, 2022 | At the PKD Foundation, we’re constantly evaluating how we can better help patients and families get the PKD care they need. In recent years, more and more data is highlighting inconsistencies in quality of care. It’s time...
by Sydney Johnston | Nov 14, 2022 | Awareness, Caregivers
Published on November 14, 2022 | In November, we celebrate National Family Caregivers Month. Family caregivers are a crucial pillar of our healthcare system, proving necessary care to their loved ones. Jennifer Visda knows firsthand what life is like as a family...
by Sydney Johnston | Nov 1, 2022 | Advocacy, Awareness
Published on November 1, 2022 | This year, the PKD Foundation created the Peer Ambassadors program. Established to build new bridges between the Foundation and previously underserved communities. Recently, two Peer Ambassadors, Tatiana Mangwi and Alyssia Gomez,...
by Sydney Johnston | Oct 27, 2022 | Advocacy
Published October 27, 2022 | On June 30, the FY23 HouseLabor, Health and Human Services, and Education (LHHS) Appropriations bill passed the Appropriations Committee. The bill report language includes a $5 million increase to support the chronic kidney disease...
