by PKD Foundation Staff | Oct 25, 2018 | ARPKD
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Melissa Justice, a member of the PKD community, to hear her story and honor the life of her daughter: What...
by PKD Foundation Staff | Oct 19, 2018 | ARPKD, Voices of PKD
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Marquila Turner, a member of the North Texas Chapter, to hear her story and honor the lives of her sons: On...
by PKD Foundation Staff | Aug 21, 2018 | ARPKD, Walk for PKD
Kevin McDonald, captain of Team Lucy D, is ready to get moving in the Detroit Walk for PKD. With the event just a few weeks away, we reached out to Kevin to learn more about his family’s experience with PKD once his daughter Lucy was diagnosed with ARPKD, how their...
by PKD Foundation Staff | Aug 17, 2018 | ARPKD, Education
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD and older ARPKD patients who are interested in learning specific information about their disease. We recently reached out to Michele Karl, ARPKD parent and...
by PKD Foundation Staff | Feb 28, 2018 | ARPKD, Voices of PKD
Published on February 28, 2018 | Today, on Rare Disease Day, we give voice to millions of people worldwide living with rare diseases through education and advocacy. Autosomal recessive polycystic kidney disease (ARPKD), a rare form of PKD, affects 1 in 25,000...
