by Sydney Johnston | Jul 14, 2020 | ARPKD, Q and A, Research
Published July 14, 2020 Rebecca Walker, Ph.D., University of Maryland How did you first get involved in PKD research? Rebecca: I did my doctorate in Dr. Dominic Norris’ lab in Oxford, UK. His lab focuses on “cilia in development and disease,” and had recently worked...
by PKD Foundation Staff | Nov 5, 2019 | ARPKD, Education, Q and A, Research
Published November 5, 2019 PKD Foundation (PKDF): How did you first get involved in PKD research? Daria: As a graduate student, I worked on a project about the regulation of the ways that our kidneys process salt we consume. There is a certain protein — ENaC, or...
by PKD Foundation Staff | Jun 18, 2019 | ADPKD Registry, ARPKD, Awareness, Research
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive Polycystic Kidney Disease Database and why it’s important to the PKD community. How many children have PKD in the United States? Who will...
by PKD Foundation Staff | May 29, 2019 | ADPKD, ARPKD, Education
On May 3–5, parents of children with ARPKD and ADPKD gathered in Chicago, Illinois, for the PKD in Children conference. The event is a destination for parents to receive essential information on managing a child’s health when they live with PKD. What did attendees...
by PKD Foundation Staff | Mar 7, 2019 | ADPKD, ARPKD, Education
We’re only a couple months out from the 2019 PKD in Children Conference, and if you’re a PKD parent, this is a can’t-miss event! Join us in Chicago from May 3 to 5 for an amazing opportunity to learn essential information on how to manage your...
by PKD Foundation Staff | Oct 25, 2018 | ARPKD
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Melissa Justice, a member of the PKD community, to hear her story and honor the life of her daughter: What...
