by admin | Jun 2, 2016 | ARPKD, PKD Parents
My son Patrick has ARPKD, he was diagnosed at 20 weeks during a sonogram. I didn’t know what PKD was at the time. Like most people, you don’t know about it until it happens to you or a loved one. Patrick is considered “the miracle baby” after...
by admin | Jun 2, 2016 | ADPKD, Living with PKD
My grandmother died in 1961 at the age of 56 from Polycystic Kidney Disease and in June of 2013, I turned 56. As a way to honor her memory and the many family members who have died from PKD I decided to hike the Camino de Santiago. The Camino de Santiago or “The...
by admin | Jun 2, 2016 | ADPKD, PKD Parents
My daughter Anabel was diagnosed with PKD around 20 weeks gestation. We were taken aback regarding the possibility of a serious, life-altering condition. Many emotions went through our minds and affected my entire family emotionally and physically. Anabel is now one...
by admin | Jun 2, 2016 | ADPKD, Living with PKD, Transplantation
Gayle Sellars passed away in March of 2013, leaving behind a strong legacy of advocacy and passion for finding treatments and a cure for polycystic kidney disease (PKD). Gayle first found out about PKD when her mother, Marilyn Zubo, was diagnosed with autosomal...
by admin | Jun 2, 2016 | ADPKD, Dialysis, Living with PKD
I was diagnosed with PKD in 2005 after an MRI on my back. Once I found out PKD was genetic, my mom and sister were tested and diagnosed as well. My grandmother died from PKD, although no one knew the exact kidney complication at the time. My Uncle Victor died two...
