jana-coxI volunteer for the PKD Foundation not only for my daughter who has autosomal recessive PKD (ARPKD), but all of the children out there that have this terrible disease. A relatively rare form of PKD, ARPKD affects approximately 1 in 20,000 children, and often causes death in the first month of life. It is my hope that one day there will be a cure for ARPKD so that no other child will have to experience what my child has had to endure. If my efforts in volunteering can help make a positive change in the future of one child and their family, my time will have been well spent.