Kristen Simms

Kristen Simms

My name is Kristen Simms. I am a 26-year-old military wife living in Northern Virginia with two children affected by ARPKD: a four-year-old boy, Elijah and a one-year-old girl, Presley. With our firstborn son, Eli, we had no idea that he had PKD. It was found after...
Nicole Cardin

Nicole Cardin

My paternal grandmother, Helen, is the first that we know of who had autosomal dominant polycystic kidney disease (ADPKD) in the family. We only figured it out when others in the family started to get diagnosed and we realized that it must have been the cause of her...
Taylor Karlo

Taylor Karlo

My name is Taylor Karlo, I’m 17 years old and I’m a senior at Olentangy Liberty High School in Powell, Ohio. I am also a volleyball player and I’m committed to the University of Saint Francis to continue my volleyball career. I live with my mom, Heather, my dad, Andy,...
Debra Dai

Debra Dai

My name is Debra and I’m from New York. I was diagnosed at the age of 22 during my pregnancy with my first child. At the time, my mother had PKD and was going through a difficult time. She was on dialysis, received a transplant from a non-related donor and,...
JoAnn Villanueva

JoAnn Villanueva

I write my PKD story on the 14th anniversary of my kidney transplant! I have two sisters, no brothers. I come from a LARGE Irish Catholic family (all raised in Chicago). Like other PKD families, many of my family members have been afflicted (five generations). My...