by admin | Aug 12, 2019 | Living with PKD
My name is Christopher and I have polycystic kidney disease. I am 20 years old and go to school at Manhattan College to study media production. I always knew my family had a history with PKD because my grandmother had gotten a successful transplant years before. My...
by admin | Aug 12, 2019 | Dialysis, Transplantation
PKD started with my grandfather, who died from the disease at the age of 49. He and my grandmother had twelve children, of whom six had PKD. Three aunts died around the age of 50 without the availability of dialysis. A fourth aunt was on hemodialysis for about 20...
by admin | Aug 12, 2019 | Living with PKD
My name is Tilia, and I have Stage 5 PKD. I was diagnosed when I was about 13 years old and did not know I would be at this stage of my disease at this age. My life consists of many, many doctor visits, unexpected hospitalizations. I’ve had many blood...
by admin | Aug 12, 2019 | ADPKD, Transplantation
I was diagnosed with ADPKD at thirty-five. While my mom knew her siblings had kidney issues, she thought she did not, since she had no symptoms. It took twenty years for my kidney function to gradually decline. I had a few episodes of cysts popping and kidney stones,...
by admin | Jun 7, 2019 | Living with PKD
I have survived Polycystic Kidney Disease for nineteen years. Having family support has been critical to my health; my brother-in-law, a better match than my family, was my living donor. His kidney donation was the most meaningful gift I’ve ever received. I am a...
