Lisa Towler

Lisa Towler

This month marks 26 years ago I found out I had PKD. It was the second week of my senior year of high school. I’m adopted and several years ago I found some information about my mother’s family. A total of 5 members including myself have been diagnosed...
Rob Herman

Rob Herman

PKD runs in my my mom’s side of the family. It has been devastating to us. My grandfather died from a major stroke caused by PKD. My mom had a major stroke that left her a vegetable at age 35 from PKD. She died at 50. My older sister recently died from a major...
Cheryl Flothe

Cheryl Flothe

PKD runs in my family through my maternal grandfather’s side—he, his dad, sister, brothers and cousins had/have the disease. Most who came before died with no chance of dialysis or transplants. My mom and uncle died in their early 60s and my brother died...
Glenna Frey

Glenna Frey

I donated my kidney to a stranger April 2017. I have been a nephrology nurse for over 30 years and understand the challenges of living on dialysis. Also, my husband and daughter have polycystic kidney disease. My husband received a kidney transplant over 16 years ago...
Melissa Justice

Melissa Justice

My daughter, Abigail Musser, was 86 days old when she passed away in July of 2017. She was a twin birth, born at 33 weeks. We found out about her diagnosis while I was 20 weeks pregnant and never expected that the worst in our lives was to come. She quickly lost...