by admin | Feb 1, 2018 | ADPKD, Living with PKD, PKD Parents, Transplantation
PKD runs in my family through my maternal grandfather’s side—he, his dad, sister, brothers and cousins had/have the disease. Most who came before died with no chance of dialysis or transplants. My mom and uncle died in their early 60s and my brother died...
by admin | Jan 30, 2018 | Caregivers, Transplantation
I donated my kidney to a stranger April 2017. I have been a nephrology nurse for over 30 years and understand the challenges of living on dialysis. Also, my husband and daughter have polycystic kidney disease. My husband received a kidney transplant over 16 years ago...
by admin | Dec 13, 2017 | PKD Parents
My daughter, Abigail Musser, was 86 days old when she passed away in July of 2017. She was a twin birth, born at 33 weeks. We found out about her diagnosis while I was 20 weeks pregnant and never expected that the worst in our lives was to come. She quickly lost...
by admin | Dec 6, 2017 | ADPKD, Dialysis, Transplantation
I was diagnosed with polycystic kidney and liver disease 17 years ago. Since then, I have had several surgeries both on my kidneys and liver to deroof cysts and alleviate symptoms, but my kidneys continued to grow and decline in function. On Nov. 1, 2016, my brother,...
by admin | Dec 6, 2017 | ADPKD, Transplantation
I am the fourth generation to be diagnosed with PKD in my family. I got my diagnosis in 2010 when I was 22. My dad, Roland, was diagnosed at the age of 42, and six months ago, at the age of 50, he got a kidney transplant! We were very grateful. Even though we have...
