Mental Health Resources for the PKD Community

Managing a chronic disease like PKD can be stressful and overwhelming at times—but whether you’re living with PKD, caring for someone who is, or supporting a loved one, you’re not alone.  

Here are a few resources and simple ways to support your mental health and emotional well-being. 

• Call our HOPE Line: If you need immediate support, dial 844.PKD.HOPE (844.753.4673) to speak with someone directly. 

• Take Care of yourself: Prioritize rest, hydration, and stress management. Learn more on our blog: https://pkdcure.org/resources/managing-mental-health-and-pkd/ 

• Get outside: Fresh air and a change of scenery can help reset your mind and boost your mood. 

• Exercise: Some studies have shown exercise to be a good tool at relieving depression. Try incorporating gentle movement and mindfulness into your routine with these PKD-Friendly Yoga sessions.
  https://www.youtube.com/watch?v=6wYajRvXJ64&list=PLxPzS1tLjqb7PllYQdHuxZ_ry2410wW-_&index=14 

• Connect with the PKD community: Whether you meet with a Peer Mentor or attend a local community meeting, connecting with others who understand life with PKD can help you feel supported. https://pkdcure.org/get-connected/ 

• For ADPKD support: Find more tips on managing mental health, quality of life, relationships, and day-to-day well-being in Chapter 7 of the “Understanding the KDIGO 2025 ADPKD Clinical Guideline,” a plain language summary designed to help you better understand and navigate your care. https://pkdfoundation.jotform.com/260346147389161 

• For ARPKD Support: Our “ARPKD Patient Handbook” offers guidance and support on topics like caring for your family and yourself, supporting your child’s emotional health while living with ARPKD, and what families should know after the loss of a baby to ARPKD. https://pkdcure.org/for-patients/patient-handbooks/