resources
PKD Advocacy in Action: What it Means and How to Get Involved
9 April 2026
This session will provide an overview of the PKD Foundation’s current legislative priorities, the state of PKD research funding, and highlights from Advocacy Day on Capitol Hill. Helping lead this discussion is the Foundation’s advocacy partner, CURA Strategies, a leading bipartisan strategic communications and public affairs agency. Whether you’re new to advocacy or looking for ways to deepen your involvement, this webinar will offer practical insights and next steps for making an impact in the PKD community today and for generations to come.
You’ll Learn About:
- What PKD advocacy is and why patient and family voices are essential to advancing policy, research, and awareness
- Gain insight into the role CURA Strategies plays in helping us shape federal policy initiatives for PKD
- Ways patients and families can get involved in advocacy, regardless of prior experience or comfort level
- Current PKD legislative priorities and research funding, including key takeaways from Advocacy Day on Capitol Hill
Speakers:
- Scott Leezer, Senior Vice President, Government Relations & Partner, CURA Strategies
- Patrick Meade, Senior Manager, Government Relations, CURA Strategies
- Advocacy Champion: Cari Maxwell
Related Resources
- 2026
- Advocacy
- Communities
- Conference
- Education
- Family Life
- Featured
- Living with PKD
- PKD
- PKDCON
- Voices of PKD
- Wellness
- 2026
- Clinical Trials
- Drug Therapy and Treatments
- Education
- Healthcare
- Healthcare Team
- PKD
- PKD News
- PKDCON
- Progression
- Research
- The Basics of PKD
- Treatment
- 2026
- Communities
- Diagnosis
- Education
- Healthcare
- Healthcare Team
- Living with PKD
- Management
- Newly Diagnosed
- PKD
- PKDCON
- Staying Healthy
- The Basics of PKD
- Voices of PKD
- 2026
- Caregivers
- Children
- Education
- Family Life
- Healthcare Team
- Living with PKD
- Management
- PKD
- PKD Parents
- PKDCON
- Staying Healthy
- Teens and Young Adults (13-20)
- Young Children
- 2026
- Complications
- Education
- Healthcare
- Healthcare Team
- Living with PKD
- Management
- PKD
- PKDCON
- Progression
- Staying Healthy
- Symptoms
- 2026
- Caregivers
- Education
- Family Life
- Healthcare
- Living with PKD
- Management
- Newly Diagnosed
- PKD
- PKDCON
- Staying Healthy
- 2026
- Aneurysm
- CHF
- Complications
- Education
- Healthcare
- Kidney transplant
- Living Post-Transplant
- Management
- PKD
- PKDCON
- Polycystic Liver Disease
- Staying Healthy
- Symptoms
- Transplantation
- 2026
- Caregivers
- Children
- Education
- Family Life
- Living with PKD
- Mental Health
- PKD
- PKD Parents
- PKDCON
- Staying Healthy
- Wellness
- Young Children
- 2026
- Caregivers
- Children
- Education
- Family Life
- Kidney transplant
- Living Post-Transplant
- Management
- PKD
- PKD Parents
- PKDCON
- Transplant evaluation
- Transplantation
- Young Children
- 2026
- Complications
- Education
- Living with PKD
- Management
- PKD
- PKDCON
- Staying Healthy
- Symptoms
- Treatment
- Wellness